Frustrated

Crohn's Disease Forum

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Joined
Feb 2, 2009
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:depressed: In recent months I have bounced around from Lialda to Entocort to Pentasa and back to Entocort. I have been in the er after a blockage had painfully passed on it's own.

I am trying to keep up with my care. I eat healthy and work out regularly but I am feeling run down and always sick. On the entocort 3 pills (9 mg) I have felt anxious and dizzy but taking them faithfully for the past three weeks. Last night I didn't feel well, chest tight and some difficulty breathing but I figured it is the effects of the drug so I pushed through a 30 minute work out on an elliptical machine and it went down hill from there. I spent the entire night fighting for a good breath, my heart racing, insomnia and horrible sweats.

This morning I called my doctor and he told me much to my surprise to decrease my pills to 2 pills (6mg) a day. That's it! No concern really that my heart is racing and I feel like it is going to pound out of my chest. He suggested no physical excursion and check back on Monday. I thought for sure he would tell me to stop taking it completely.

The bad cramping has stopped which I am thrilled about but I still deal with the D. I have replaced the cramping with nausea, heart palpitations, excessive thirst and insomnia. I want it all to go away! NO more pain, NO more inconvenience and NO more pills!!!

I feel damned if I do and I know I will be damned if I don’t. I’m sorry, I just had to vent.
 
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