A had her first follow-up since diagnosis today, and other than the extremely long wait things went great. First, the GI reviewed her labs and all was well other than some vitamin levels (can't remember which ones). He recommended we add a daily children's vitamin so I'll pick some up this week. Unfortunately, the lab lost her TPMT test and it never made it to California so we had to have that redone downstairs after her appointment. Not a huge deal, but annoying. We won't be using the local clinic for labs anymore.
GI was extremely happy with her weight gain (almost 6 lbs.!!) and commented several times about how "healthy" she looked. He did say that he felt some of that was water weight, but he didn't feel she needed the Periactin anymore. Hopefully she'll maintain the weight on her own.
We will be adding 6mp as soon as the TPMT test comes back. I'm at peace with this decision because I am ecstatic with how well A is doing right now. We'll discuss weaning from the Prednisone after she's been on the 6mp for 2 months. She'll be staying on the Pentasa and also adding Prilosec (while on the Prednisone). So a few changes, but hopefully this combo will keep her feeling good.
He also checked her bottom because she has been having a little pain with BMs. He said it was very red and that I should keep an eye on it. Anyone have any recommendations for sore/red bottoms? Maybe wet wipes instead of TP?
GI was extremely happy with her weight gain (almost 6 lbs.!!) and commented several times about how "healthy" she looked. He did say that he felt some of that was water weight, but he didn't feel she needed the Periactin anymore. Hopefully she'll maintain the weight on her own.
We will be adding 6mp as soon as the TPMT test comes back. I'm at peace with this decision because I am ecstatic with how well A is doing right now. We'll discuss weaning from the Prednisone after she's been on the 6mp for 2 months. She'll be staying on the Pentasa and also adding Prilosec (while on the Prednisone). So a few changes, but hopefully this combo will keep her feeling good.
He also checked her bottom because she has been having a little pain with BMs. He said it was very red and that I should keep an eye on it. Anyone have any recommendations for sore/red bottoms? Maybe wet wipes instead of TP?