Hello! New Member, Crohn's vet :p

Crohn's Disease Forum

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Joined
Oct 8, 2012
Messages
4
Hi,

My name is Rafaela and I was diagnosed with Crohn's disease and Ulcerative colitis in 1999. I have moderate to severe CD and UC, although I would consider it severe.

I've been on a lot of medications over the years, but none seemed to put me on remission. Once I started on biologics in 2004 (Remicade), my life changed for the better. I no longer felt pain, but still had to deal with diarrhea. My quality of life improved tremendously.

I opted to have a colon resection in 2007; I had developed two fistulae. My GI doctor was against it but I weighed the pros and cons and decided to go through with it anyways. I had three wonderful years, of being healthy, in remission and virtually medication free.

But my disease came back with a vengeance mid 2010. Nothing was working and I started losing weight, developed a severe flare, along with rectal fistulae that would not heal. I was hospitalized for almost 8 weeks and had a colostomy 06/2011.

My health improved again, the fistulae healed and I had my takedown surgery in 02/2012. Despite all this I flared again in 7/2012. I am currently on remission (yay! :applause: ), on maximum therapy.

Cimzia 200mg Q2 weeks, 6MP 50 mg BID

I am well and healthy. :D

Life is short, gotta enjoy every moment.

I just need to improve my diet. I have gained a lot of weight in the past few months... Prednisone was the culprit... I'm finding it hard to lose the extra pounds....
 
Hi there!

Thank you for the information! I will check it out. Good to see you are also doing well and congrats!

xo

rafa
 
Hey there Rafaela and welcome to the community! Thank you for joining and sharing your story.

That's fantastic that you're in remission. I hope it lasts a long, long time :)

All my best to you!
 
Thank you very much! Indeed it took a long time, but I am doing great! I'm being a good girl and taking all my meds... I'm very excited to be part of this community, since I've felt alone in this journey for a long time.

xoxo

rafa
 

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