Hello!

[penguin]

:bigwave:

I've been kindly nudged this way as my daughter who is 4 has a gastrostomy, has had a nissens fundoplication and a pyloroplasty. She was also a preemie born at 28weeks. She still has a few gastro troubles now and is still under investigation. She doesn't have IBD diagnosed but she does go through the mill with her stomach and the pain she gets. Be nice to chat to other parents who know what it's like to have a child who lives with a gastro condition.

She also has two brothers, one older who's 5 and is thankfully healthy. The other brother who's 3, was born very prematurely at 25 weeks and has had heart surgery, two eye surgeries, is partially sighted in one eye and is a right little terror They are all very beautiful and amazing kids, they keep me focused on what's important in life and leave me speechless with their courage and kind natures.

And I wonder why I have problems with my own insides with all this going on! :lol2: so a big hello from us! xx

 

[dannysmom]

Hi! Welcome. Boy you have your hands full! I have 3 kids too but they are much older (14,17,18) and I am always thankful too that my 17 yr old daughter is healthy! My 14 yr old son, Danny, has GI issues but is also not diagnosed with an IBD. This forum is filled with many supportive parents.

 

[penguin]

Hi Jeanne, lovely to hear from you. I've just read Danny's story, the poor love has really been through it. It's tough when you just don't know what's wrong with them. Are you any closer to answers since your last update on Danny's story?
X

 

[Crohn's Mom]

Hi there Penguin and welcome !

Boy, oh boy, you do have your hands full don't you! You sound so very positive though :kiss:
Hope to see you hanging around in here, and if you have any questions for us just shoot away!

again, welcome!
~T~

 

[DustyKat]

Hey Penguin, :bigwave:

I am so glad you found your way here, YAY!

Goodness me, you certainly have had your fair share of trials and tribulations, and I bet your brood are just fab!

Make yourself at home! Kick back, put your feet up, grab a wine and welcome to the club! Any questions just fire away, remember, there is no such thing as a dumb question or too much information!

I hope you are okay too hun and can manage to find some time to have your own problems taken of.

Thinking of you and yours mate...:Karl:
Dusty. xxxxxxxx

 

[penguin]

Thanks for the lovely welcome :bigwave: yes, I do very much have my hands full, but I've never had children who weren't sick or born so close together, so I can't compare and can't complain

I'll definitely take up that offer of wine, though I may wait a couple of days as I don't know if wine and sedation go well together hehe. I'm certainly trying to take care of myself at the same time more now, part of the process is trying to get a definite DX for me (70minutes and counting till I have to be at the hospital).

Hope you all have a good day,

Penguin x