Help my 5 year old so confused

[Brittanyrogers52]

I’m wondering if someone can explain to me in detail what these biopsy’s are saying and what could my 5 year old have Crohn's?

Stomach, antrum, endoscopic biopsy’s: oxytnic and antral mucosa with no significant pathological abnormality

Small intestine, duodenum biopsy’s: patchy chronic inflammation ,
focal villous blunting and crypt hyperplasia

Small intestine,ileum terminal biopsy’s: reactive Peyers patch

 

[tzvia]

I’m wondering if someone can explain to me in detail what these biopsy’s are saying and what could my 5 year old have Crohn's?

Stomach, antrum, endoscopic biopsy’s: oxytnic and antral mucosa with no significant pathological abnormality

Small intestine, duodenum biopsy’s: patchy chronic inflammation ,
focal villous blunting and crypt hyperplasia

Small intestine,ileum terminal biopsy’s: reactive Peyers patch

In short, it mean that there are areas that show inflammation and damage , especially in the small intestine. The stomach looks fine. Peters patch is reacting, meaning that’s there is an immune reaction happening.

The question is why is there inflammation, some damage, and an immune response? Has the doctor told you that it is crohns or something else? Have you ruled out celiac disease or other food allergies?

 

[Brittanyrogers52]

In short, it mean that there are areas that show inflammation and damage , especially in the small intestine. The stomach looks fine. Peters patch is reacting, meaning that’s there is an immune reaction happening.

The question is why is there inflammation, some damage, and an immune response? Has the doctor told you that it is crohns or something else? Have you ruled out celiac disease or other food allergies?

Thank you so much for replying back to my question. This has been the most frustrating, heartbreaking experience. My daughter has been sick since the end of December. First started out with fever and mouth sores, vomiting , stomach pain that lasted a whole month. Then it turned into a oral yeast infection. Random fever started coming back and the stomach pain never went away. She was then put on medication after medication. April 5th she finally went in for a egd and colonoscopy with biopsy’s because of her stool test coming back high at a 256. The night after her procedure she ran fever, the next day she couldn’t stop vomiting. Since the 5th she has been to the er 7 times total her belly pain has been so intense she is screaming in pain they had to give my 5 year old morphine for pain. They have done mri, ct scan, ultrasounds they thought it was her appendix because they couldn’t find it but later ruled appendicitis out . She can’t be a normal 5 year old she is always in constant pain with mouth sores and intense belly pain, at times she can’t even walk she complains of her legs being tired. Her gi specalist has been absolutely no help just told me her biopsy’s look fine and no treatment plan!!!!!!!! I was finally sent to a rheumatologist yesterday and she told me there is something seriously wrong, waiting for the blood results. We have history of Crohn's on my side of the family and my husbands side. Allergy testing has been done and she is completely allergy free, celiac panel has been ran and that came back fine as well. Now her iga level through the celiac panel has been high since she was two years old. I just have a really good feeling this is Crohn's

 

[ronroush7]

You might want to try the section on here called Parents of Kids with ibd. I am going to tag my little penguin, Maya 142.

 

[tzvia]

Thank you so much for replying back to my question. This has been the most frustrating, heartbreaking experience. My daughter has been sick since the end of December. First started out with fever and mouth sores, vomiting , stomach pain that lasted a whole month. Then it turned into a oral yeast infection. Random fever started coming back and the stomach pain never went away. She was then put on medication after medication. April 5th she finally went in for a egd and colonoscopy with biopsy’s because of her stool test coming back high at a 256. The night after her procedure she ran fever, the next day she couldn’t stop vomiting. Since the 5th she has been to the er 7 times total her belly pain has been so intense she is screaming in pain they had to give my 5 year old morphine for pain. They have done mri, ct scan, ultrasounds they thought it was her appendix because they couldn’t find it but later ruled appendicitis out . She can’t be a normal 5 year old she is always in constant pain with mouth sores and intense belly pain, at times she can’t even walk she complains of her legs being tired. Her gi specalist has been absolutely no help just told me her biopsy’s look fine and no treatment plan!!!!!!!! I was finally sent to a rheumatologist yesterday and she told me there is something seriously wrong, waiting for the blood results. We have history of Crohn's on my side of the family and my husbands side. Allergy testing has been done and she is completely allergy free, celiac panel has been ran and that came back fine as well. Now her iga level through the celiac panel has been high since she was two years old. I just have a really good feeling this is Crohn's

I’m so sorry you and your little girl are going through this. If it were me, I’d seek a second opinion from another pediatric GI specialist. There has to be some cause of the symptoms and the inflammatory response. Hopefully the rheumatologist will have some answers for you.

 

[Brittanyrogers52]

You might want to try the section on here called Parents of Kids with ibd. I am going to tag my little penguin, Maya 142.

Thank you just posted my story in there

 

[Brittanyrogers52]

I’m so sorry you and your little girl are going through this. If it were me, I’d seek a second opinion from another pediatric GI specialist. There has to be some cause of the symptoms and the inflammatory response. Hopefully the rheumatologist will have some answers for you.

Thank you so much it’s has been a circus right now praying for answers. May 17th I’m getting a second opinion through a different gi specialist

 

[Anna's Bandit]

Thank you so much it’s has been a circus right now praying for answers. May 17th I’m getting a second opinion through a different gi specialist

There are a lot of people here who can help you figure out what to do.

Thank you Ron for tagging little penguin and Maya.