Hi all. First post.

[fosamoa]

I'm 20 and was just diagnosed with crohns about 4 or 5 months ago. It sorta all made sense. I've had digestive sensitivity/problems my whole life (prone to stomach aches and vomiting) and then recently around that time I was getting intense cramps where I didn't even want to move and experienced incomplete evacuation/constipation. That prompted me to go to a GI, where I had a colonoscopy, and sure enough there was inflammation in my small intestine.

I'm currently seeing a GI in NYC (where I'm from) at a firm that is actually regarded as one of the best for IBD disorders. I was put on an apriso and entocort regiment and it was a resounding success. However, this past week, I've been getting cramping and constipation again. What's weird is it's not the intense hour-long ones from before, but a more moderate pain that lasts longer (I think this makes it worse actually). I've been feeling a little depressed because of this, as a combination of the pain, and that it came back after experiencing a period of remission. My doctor thinks it may be a result of my decreasing my entocort intake (I'm slowing weaning of it as per her instructions). Has anyone else experienced this? I worry about having to take more powerful drugs, as I understand mine are actually on the less extreme end of IBD drug treatments.

Hope this isn't too much of my life story, :biggrin: A few questions: Any tips for mediating pain from incomplete evacuation? I was also curious on how exercise, or even movement in general, affects you either before or even during a flare-up in helping. Is sugar ie. candy a possible trigger? How do you measure which food is the triger (how long before the flare up would be considered the possible trigger food)?

And there's my intro. This place seems like a great resource/support system so thanks for existing lol.

Cheers, Bobby

 

[David]

Hey there Bobby and welcome to the community. I'm glad you joined. I'm sorry to hear the pain has come back as you've begun to ween on your Entocort. And yes, you're right, you're definitely at the low end of the totem pole when it comes to the power of the potential drugs. If you haven't seen it yet, we have an Entocort forum under our "Treatment" forum where others on it share their stories and ask questions. Unfortunately, flaring up when tapering down isn't that uncommon.

As for the diet question, that's a tough one too. You may want to ask that question in a new thread in our diet forum. Though you'll likely get different answers as it's such a complicated question

Again, welcome! We're here for you anytime you need us.

 

[Aura]

Talofa lava Bobby

Hope that's okay - I noticed 'fosamoa' in your user name, I'd ask Oa mai oi? But I am not sure of my spelling :biggrin: Welcome to the forum.

Food is a great question as to what triggers and what does not trigger, I think it does come down to your own unique body really. What I could handle and cope with may be different from you - for no rhyme nor reason.

I think a range of medications can impact on how you think and feel. I have not been on Entocort - but I have been on prednisone and that does impact on my moods - especially when I am trying to get off it.

 

[wild_one353]

i have crohns in the typical ileum location and further up the small intestine as well as different places in the colon. here are some things that i have found true for me.

powerful initiators of diarrhea- sugars such as sucrose and lactose and bread yeast.
to a lesser degree, fructose and other sugars.
this includes just about all fruits, some fruits are more tolerable then others, it will depend on your individual condition.

initiators of constipation- refined white bread/flour, meat, corn, rice, barley. for the most part, most starches.

foods I can tolerate well. wheat, oats, refried beans, overcooked broccolli and cauliflower, 2-3 ounces of cheese.

try some of this info out and see if it helps you navigate the terrain.

i have managed my disease with diet for 3.5 years, with little use of any drugs, which, i dont necessarily recommend. i recommend trying both drugs and dietary changes.

 

[fosamoa]

Thanks wildbill.

I've never had diarrhea problems associated with my crohns oddly enough. When you say meats does that mean a specific type (red or white)? It seems really restrictive. What do you usually eat? Is your protein mostly from beans?