Didn't know anything about this site until recently. I have been reading a few stories and I am sooo relieved to find I am not the only one suffering through the
pain, discomfort, embarassment and humiliation that comes with this cruel and merciless disease. I was diagnosed with Crohn's 30 yrs ago and had 2 bowel re-sections during the first 10 yrs. I took Salazopyrene during that time but the side effects were terrible i.e. major dental problems. I had a major "flare up" 9 years ago which lasted 2-3 years. I am now taking Pentasa (8 a day) and numerous vitamin pills. Also getting a B12 shot every month. Like everyone else food and sleep are the most important things in my life. Food is more like an enemy. I try to pace myself by eating lightly during the day and nothing after 8 p.m. Seems to work fine until my boyfriend visits and then you know what happens.....all nighter in the bathroom, sometimes I don't make it in time. Then there is the hassle of explaining to people why you are not hungry at normal mealtimes, why you are dropping off to sleep at 11 a.m. after being awake since 8 a.m., why you are in the bathroom 5 times in one hour, why you can't dine out in the evening and then "dance it off", etc., etc. I might have rambled on a bit and I don't want to bore you any more than I have. I'm sure all of you know the drill by now.
pain, discomfort, embarassment and humiliation that comes with this cruel and merciless disease. I was diagnosed with Crohn's 30 yrs ago and had 2 bowel re-sections during the first 10 yrs. I took Salazopyrene during that time but the side effects were terrible i.e. major dental problems. I had a major "flare up" 9 years ago which lasted 2-3 years. I am now taking Pentasa (8 a day) and numerous vitamin pills. Also getting a B12 shot every month. Like everyone else food and sleep are the most important things in my life. Food is more like an enemy. I try to pace myself by eating lightly during the day and nothing after 8 p.m. Seems to work fine until my boyfriend visits and then you know what happens.....all nighter in the bathroom, sometimes I don't make it in time. Then there is the hassle of explaining to people why you are not hungry at normal mealtimes, why you are dropping off to sleep at 11 a.m. after being awake since 8 a.m., why you are in the bathroom 5 times in one hour, why you can't dine out in the evening and then "dance it off", etc., etc. I might have rambled on a bit and I don't want to bore you any more than I have. I'm sure all of you know the drill by now.
