- Joined
- May 10, 2011
- Messages
- 36
Hello Everyone.
My name is Isaac or Isak, whichever way you prefer to spell it. I'm a 20 year old student at Kent State University studying political science, international relations, and economics. I speak four languages including English. Hence, the international relations concentration. I reside in NJ with my family during the summer. Well, get ready for my store, it's fairly long since I enjoy writing. When I was 13, I noticed I had blood in my stool while using the bathroom. This was scary because I was home alone at the time. My mother and father came home two hours later and of course being the age of 13, I expressed my fear to them while crying. I doubt they understood me because I was frantic. We set up an appointment with a GI in Morristown Memorial Hospital who eventually had me undergo a colonoscopy. I was diagnosed with Ulcerative Colitis at that time. I started Asacol and everything was quite dandy. I felt as if I never even had it. Then, one day, I started developing an abdominal pain. Turns out that pain was pancreatitis caused by the Asacol. I immediately stopped asacol, and thats when I started flaring terribly. I was placed on Colozal, but to no avail. I started prednisone, which helped for about 3 hours after taking a pill. I eventually got to a point where I was visiting the bathroom 35 times a day. That was nice. I was admitted to the hospital eventually. I spent a good 30 days in there. My original GI put me on IV steriods, but I was not improving whatsoever. This GI was the worst. All she recommended was surgery and ciclosporin. I asked for my GI to be change to the head of the department. He recommended I take Remicade, which was still fairly new in 2003, along with 6MP. I was always called the Remicade miracle because the remicade literally put me into remission as soon as it entered my system. The first dose took me from constant bleeding and 35 bathroom trips, to no blood and going to the bathroom 2-3 times a day. It was a miracle for me at least. I started using remicade every month, then every two months, then eventually I was using it only once a year while on 6MP. I got to the point where only 6MP was necessary. Unfortunately, the 6MP made my lymph nodes start swelling. I stopped the 6MP, and within 2 weeks, I was flaring up. That was two years ago. Lets catch up to present time. I started attending Kent State this semester as a transfer student. I met a new GI at the Cleveland Clinic. By the way, I forgot to mention I started developing a fistula, no fun. This new doctor at the Clinic gave me a new diagnosis of Crohns Colitis. He wants me to start up in 6MP again, which frankly I'm hesitant. I tried Remicade again, but it lost its effectiveness. I had a perfect serum level with the remicade, just wasn't doing the job anymore. Now, my next drug is going to be LDN. I I want to try that before going on 6MP again. I did a lot of research on this drug, it seems to be helping a good amount of people. It doesn't hurt to try I suppose. I've also tried all kinds of supplements. That's my story for the most part. Sorry it's so long. I'm sure I missed some things as well. Thank you for letting me share my story. I look forward to communicating with people in this form
My name is Isaac or Isak, whichever way you prefer to spell it. I'm a 20 year old student at Kent State University studying political science, international relations, and economics. I speak four languages including English. Hence, the international relations concentration. I reside in NJ with my family during the summer. Well, get ready for my store, it's fairly long since I enjoy writing. When I was 13, I noticed I had blood in my stool while using the bathroom. This was scary because I was home alone at the time. My mother and father came home two hours later and of course being the age of 13, I expressed my fear to them while crying. I doubt they understood me because I was frantic. We set up an appointment with a GI in Morristown Memorial Hospital who eventually had me undergo a colonoscopy. I was diagnosed with Ulcerative Colitis at that time. I started Asacol and everything was quite dandy. I felt as if I never even had it. Then, one day, I started developing an abdominal pain. Turns out that pain was pancreatitis caused by the Asacol. I immediately stopped asacol, and thats when I started flaring terribly. I was placed on Colozal, but to no avail. I started prednisone, which helped for about 3 hours after taking a pill. I eventually got to a point where I was visiting the bathroom 35 times a day. That was nice. I was admitted to the hospital eventually. I spent a good 30 days in there. My original GI put me on IV steriods, but I was not improving whatsoever. This GI was the worst. All she recommended was surgery and ciclosporin. I asked for my GI to be change to the head of the department. He recommended I take Remicade, which was still fairly new in 2003, along with 6MP. I was always called the Remicade miracle because the remicade literally put me into remission as soon as it entered my system. The first dose took me from constant bleeding and 35 bathroom trips, to no blood and going to the bathroom 2-3 times a day. It was a miracle for me at least. I started using remicade every month, then every two months, then eventually I was using it only once a year while on 6MP. I got to the point where only 6MP was necessary. Unfortunately, the 6MP made my lymph nodes start swelling. I stopped the 6MP, and within 2 weeks, I was flaring up. That was two years ago. Lets catch up to present time. I started attending Kent State this semester as a transfer student. I met a new GI at the Cleveland Clinic. By the way, I forgot to mention I started developing a fistula, no fun. This new doctor at the Clinic gave me a new diagnosis of Crohns Colitis. He wants me to start up in 6MP again, which frankly I'm hesitant. I tried Remicade again, but it lost its effectiveness. I had a perfect serum level with the remicade, just wasn't doing the job anymore. Now, my next drug is going to be LDN. I I want to try that before going on 6MP again. I did a lot of research on this drug, it seems to be helping a good amount of people. It doesn't hurt to try I suppose. I've also tried all kinds of supplements. That's my story for the most part. Sorry it's so long. I'm sure I missed some things as well. Thank you for letting me share my story. I look forward to communicating with people in this form
Last edited:
