Hi,
I was diagnosed with CD August 2011. Prednisolone helped to start with but hasnt really since Jan 2012 and i got worse and worse. I lost nearly 2 stone and was bed and house bound for about 2 months. 3 weeks ago i had my first infliximab infusion and its really worked. All the stomach pain, D and lost appetite has gone - ive put on 8lb in 2 weeks which im not happy about but i am happy if you know what i mean. Anyway im still on prednisolone but tapering down and will be off it in 3 weeks. Ive had my second infliximab infusion 2 weeks after first and i have next one in 4 weeks.
So since the first infusion nearly 3 weeks ago ive been able to leave the house and even walk my dogs. Ive been off work since early jan and as im freelance i will have to look for work again which i wont do until im feeling 100%. I do agility with my dogs which involves a little bit of running. Only 30 seconds or so each class. I went last thursday as i havent been since december and miss it so much. Well i collapsed in the middle of the ring. I didnt feel i had lost my balance or anything i just felt so weak i couldnt hold myself up and when my heart rate had gone up it felt like it might jump out my chest. Before jan i could run 3 dogs in 5 rounds each without a problem. Im nearly back to the weight i was before being ill this time but i have no muscle. My legs look like sinews. How do i go about getting some strength back? Is it just time or are there things i can do - walk my dogs for longer etc? The last 3 weeks ive cleared out the attic and garage and done loads of stuff around the house - partly as the steroids make me hyper. But im certainly not sat doing nothing all day. But i seem Ok doing the house work and even hoisting boxes up and down the attic but a few seconds of dog agility and i couldnt do it -my legs felt like jelly for 2 days after. Ive also struggled a bit to open some bottles if the lids tight. my skins all really saggy too and my periods have stopped - a disaster when im starting IVF as soon as im well enough.
so how do i build my muscle back up not just my weight?
I was diagnosed with CD August 2011. Prednisolone helped to start with but hasnt really since Jan 2012 and i got worse and worse. I lost nearly 2 stone and was bed and house bound for about 2 months. 3 weeks ago i had my first infliximab infusion and its really worked. All the stomach pain, D and lost appetite has gone - ive put on 8lb in 2 weeks which im not happy about but i am happy if you know what i mean. Anyway im still on prednisolone but tapering down and will be off it in 3 weeks. Ive had my second infliximab infusion 2 weeks after first and i have next one in 4 weeks.
So since the first infusion nearly 3 weeks ago ive been able to leave the house and even walk my dogs. Ive been off work since early jan and as im freelance i will have to look for work again which i wont do until im feeling 100%. I do agility with my dogs which involves a little bit of running. Only 30 seconds or so each class. I went last thursday as i havent been since december and miss it so much. Well i collapsed in the middle of the ring. I didnt feel i had lost my balance or anything i just felt so weak i couldnt hold myself up and when my heart rate had gone up it felt like it might jump out my chest. Before jan i could run 3 dogs in 5 rounds each without a problem. Im nearly back to the weight i was before being ill this time but i have no muscle. My legs look like sinews. How do i go about getting some strength back? Is it just time or are there things i can do - walk my dogs for longer etc? The last 3 weeks ive cleared out the attic and garage and done loads of stuff around the house - partly as the steroids make me hyper. But im certainly not sat doing nothing all day. But i seem Ok doing the house work and even hoisting boxes up and down the attic but a few seconds of dog agility and i couldnt do it -my legs felt like jelly for 2 days after. Ive also struggled a bit to open some bottles if the lids tight. my skins all really saggy too and my periods have stopped - a disaster when im starting IVF as soon as im well enough.
so how do i build my muscle back up not just my weight?
