How long???

[my little penguin]

DS started 30mg of pred a day on Wednesday. 15 mg on Tuesday night but not a full dose until Wednesday.
SO we are doing a 6 weeks taper.
7 days at each dose then lower by 5mg.
HOw long until you saw an improvement in the symptoms.
He still has stomach aches, urgency issues and had 5 bm's alone today.:yfaint:

Trying to stay hopeful- but.....
just frustrated at this point .
I know the MTX can't work yet but I thought the pred would have fixed him up.

 

[Clash]

So sorry the pred hasn't kicked in yet, C is 15 and he started at 40mg and was on that for a month before the taper started. Sadly, at that dosage did not help at all. He had a ct scan after a month on pred and the gi said the inflammation was still prevalent. He said it wasn't helping but he was experiencing all the side effects, we were only on pred while waiting for Remi approval by ins. So we started tapering when it was established there was no benefit. Hope it starts working for your son soon!

 

[kimmidwife]

I am pretty sure we began to see improvement with in a week but it has been a while maybe someone who has used it more recently will chime in.

 

[Mom2oneboy]

We started to see good improvement by day 3 on pred. As with all these meds, everyone responds differently so maybe he just needs a few more days. Fingers crossed!!

 

[Catherine]

We saw major improvement within 3 days and was back at school after 6 days. Sarah would have gone to school on day 5.

 

[Catattack]

Ive been taking Pred for the past two weeks and I saw some improvement after the first dose! Im on 30mg a day. Now all my symptoms have completley gone and I dont feel like tbere is anything wrong with me at all...I cant believe it! Im suprised you have to taper so soon as although I feel great my GI wants me to stay at the 30mg for one more week and then reduce by 5mg a week. I do hope the Pred works for you, I know it can take a bit longer for some people.

 

[AZMOM]

Depends on the severity of the flare, I think and how much he's absorbing. (vs expelling without digesting due the inflammation). In our experience, improvement in 3-5 days. But the one time she was at her very worst and in the hospital, it took over a week and that was IV.

I share that NOT to be discouraging but to tell you it will get better. Love your heart......

Hang in there!!!

J.

 

[polly13]

It was about day 10 on the prednisone before we saw an improvement

 

[Twiggy930]

In about 3 days my son had a reduction in the number of BM but still had diarrhea and urgency and the BM he had were still basically nocturnal (4 am). He still had abdominal pain but it was a little lessened. His appetite shot way up almost immediately. He was on 40 mg of pred for 5 weeks and then tapered by 5 mg per week. We ended up switching to EN but were then stuck with the pred taper.

I really hope it kicks in for you son soon. Even though it didn't completely work for my son it did stabilize him somewhat. At one point our GI considered putting him on IV pred as it can be effective to do that for a few days and then switch to the tablets.

:hang:

 

[crohnsinct]

O was in hospital on IV prednisone and had her first Remicade during that time. We saw very slight improvement within 4 days but was feeling much better at about the 8 day mark. I hope it kicks in soon!

:hang:

 

[DustyKat]

For Matt Prednisone didn't work as such. I do believe it stabilised his condition but it didn't improve it. As it was turned out he had other complications.

I hope you see some improvement ASAP! :goodluck:

Dusty. xxx

 

[my little penguin]

my problem is biopsies are clean.
Blood work is normal.
Scope "looked" bad- visually inflamed.
still has occasional hip pain.

KIddos stomach aches have not gone away for 8 months.
in past few months added the feeling like he needed to go all day and night.
BM's are not D- they are very formed -just a lot of them-

So not sure if I should push harder or not.
Since ds's symptoms are subjective not objective and he is 8.:shifty:
not sure if he has something other than crohn's adding fuel to the flames either
since he also has a other medical issues- what would be one more.
We currently go to a reasonably sized ped hospital (ranked in the top 10 in the US for GI stuff)- but our GI does not handle many IBD cases. He does however listen and is willing to try most things I ask...so not sure changing would do anything since there really aren't too many options to begin with-
He also asks the others in the practice with more experience with IBD when Ds starts to not follow the rules.
Part of me wants to make an appt at a bigger IBD clinic but even without the drive - it would still not help in the day to day stuff which needs constant feedback and the availability to "pop in" to see the doc if needed which we have now.
Things to ponder.
I also know I need to give the new drugs time to work first to see if things improve- but the thought of waiting another 3-6 months for improvement just is not sitting well.

There needs to be an owner's manual complete with a flow chart- of this then this.
Right now everyone responds differently and is using different drugs so.....

 

[Twiggy930]

There needs to be an owner's manual complete with a flow chart- of this then this.
Right now everyone responds differently and is using different drugs so.....

Yes!!! I have said to many people that I need an instruction booklet! Waiting stinks, especially when it isn't clear if things are really going to get better. We are in the same boat. Our latest blood test also came back clear. It is oddly infuriating now when tests come back clear. I want something concrete to fix!!!! :voodoo:

 

[izzi'smom]

our pred response was within 2 days