How much weight have you gained on Entocort?

[crohnie2]

I'm wondering how much weight people have gained on entocort? i am in a flare and am curious how much weight people have gained, and if they have gained weight, how long were you on the drug?

 

[kllyeve]

On the drug 8 months, gained 30 lbs but I wasn't watching calories very closely which I now regret. I was hungrier than normal and could actually eat without pain so I gained very quickly.

If you go on it watch your diet as you may be hungrier than normal.

 

[Latte]

So far 7lbs in 5 weeks but I did go away for one of those weeks so some of it will be holiday weight gain.

I am not happy about it as I struggle to lose weight anyway due to the PCOS and I am usually in the over weight very over weight category so I am very upset at the moment as it has taken me 18 months to lose 16lbs and I am on the Entorcort for at least 18 weeks and there is no way I am going to put all that weight back on again.

I have started to seriously calorie count again to see if that helps

 

[Polaris]

i gained around 15lbs, and am already slightly overweight. i was on Entocort for about 8 weeks.

 

[Racheld]

I lost weight on both entocort courses

 

[Jennifer]

I've never gained weight while on Entocort and have taken it multiple times (usually at least 3 months each time but one time was closer to a year). Only steroid I ever gained weight from (which was water weight and came off quickly once I was off it) was Prednisone.

 

[Mattannika]

Ive been on prednisone ever since I was first diagnosed with a severe Crohns this summer. I've tapered down with lots of hiccups, was finally down to 5mg. At that point I was scheduled for a capsule endoscopy which screwed me up completely! My crohn's is mainly in my colon and rectum, so awful! And just in time for Christmas I am back up to 40mg prednisone! So frustrating. So next in line seems to be going on Humira after all.....but for now, I am wondering, how do prednisone versus entocort effect you? What have been the side effects? This time around even 40mg of prednisone doesn't seem to work as well as it did the first time around, I'm in pain most evenings and night. The doctor I see mentioned entocort, but I chose to stay on prednisone, simply because I knew how I text with side effects to prednisone, I'm only experiencing the sleeplessness.....but I am now wondering if entocort would maybe help my pain better? Just afraid of side effects.....
Thanks! Happy holidays!

 

[Jennifer]

I always chose Entocort over Prednisone. There are so many side effects with Prednisone and with Entocort there are very few. Personally I never had any side effects while on Entocort. It also completely got rid of my joint pain. Its definitely worth trying Mattannika. You also don't have to wean off of it like you do with Prednisone.

 

[Mattannika]

Thanks do much for your quick reply Crabby! I was wondering the weaning off issues as well, so glad you mentioned that! I think I will contact my docntomorrow to see if I can switch over.....I wonder if that's an easy thing to do? I feel so awful at night like right around this time....my achiness starts in lower back and abdomen and goes all night....horrific. I wondered if this is maybe not even crohn's related, but my doc says it must be....

 

[Jennifer]

It very well may be Crohn's related Mattannika. I had the same problem in the past during a flare. Even if you switch to Entocort you'll still have to wean off the Prednisone slowly. Good luck!