How to Use Low Dose Naltrexone for Crohn's Disease

[Mazen]

This link describes a six step approach on how to use LDN:

http://www.ehow.com/how_2346320_use-low-dose-[wiki2="Naltrexone"]naltrexone[/wiki2]-crohns.html

In one of the steps he mentions compounding your own LDN as follows:

"If using full strength naltrexone, dissolve one 50mg tablet in 50ml distilled water. Store in refrigerator. Shake well before each use. Use medicine dropper to measure the correct amount of medication."

Has anyone tried compounding their own LDN? What were your experiences?

 

[D Bergy]

Someone that lives North of me said he compounded his own since he could not get a prescription. He was doing well on it. He said it was important to keep it refrigerated.

Dan

 

[BWS1982]

I wonder if I'll end up considering LDN later down the road or not, it's been a thought in the back of head, and an alternative to Tysabri since I'd be happy avoid that whole death thing and whatnot....So is a Naltraxone lab more legal than say a meth lab?

 

[Kev]

I've seen this info on the lowdosenaltrexone forum. I was considering it as my last recourse if a local doc wouldn't prescribe it, or I couldn't find a pharmacy to compound it. But those anticipated roadblocks failed to materialize. There are first hand accounts on the ldn forum from folks who've gone that route.

as for the article, it is a thumbnail sketch of the info, leaves out quite a lot, (fails to mention or explore the risks) and starts off equating IBD and IBS (tho that could be a simple typo.. if so, pretty amateurish mistake to make, and if not, then it displays a glaring mis-understanding of IBD in general).

As to my take... this sept marks my two year anniversary of taking LDN. It has dramatically changed my life, but it is by no means a cure for any IBD. I equate it like so... to my way of thinking, it is to crohns what insulin is to diabetes. Perhaps an oversimplification, even an over dramatization, but its close enough. I just say a prayer every night.. thankful for my LDN, yet also hopeful it will keep doing its thing. And nary an adverse effect in sight.

 

[ITSMEAGAIN]

hey Kev welcome back. Quick thread highjack here. Your a fellow maritimer like me, how did you get your docs to put you on LDN. My GI has never heard of it.
I want to educate them but not sue how to go about it. Is their a trial being done locally?

 

[Kev]

Hey ITSMEAGAIN, my GI never heard of it before I showed up for an appt. with a printout of the American Journal of Gastro-enterology Report with an item on the 1st trial of LDN and its success rate and lack of side effects. She said she'd look into it. My next visit, she pulled out the full report, and since I'd just gone thru an emergency trip to the hospital due to imuran toxicity, and my remaining options were pretty bleak (couldn't afford Remi, or Humira, and Cimzia wasn't on the horizon)... boiled down to methotrexate or nothing, and metho is pretty toxic too, and with a very low and rapidly diminishing sucess rate... Sooooo, she agreed to trial me on it.. and one other of her patients who was in practically the same boat. (odd coincidence, the other patient got the LDN, then moved away to.. guess where... Moncton.. and hasn't been heard from since, so my GI has no idea as to whether it worked, or how that patient is doing, etc., etc.. )

Anyway, here I am, two years into it, and doing great. There is one local pharmacy that compounds it for me, but i'm trying to convince another to take on the task (the one that is currently doing it is in a local hospital, and is only avail Mon - Fri 8:30 to 4:45.. Makes it tricky with my hours to get it refilled. As to getting it for yourself, you are going to have to fight that battle for yourself. Arm yourself with the evidence from the AMG, and consider whether it is the 'best' step for you. There is a risk.. it may not do for you what it did for me, and while waiting for the 6 - 8 weeks it may take for your system to respond, you can flare.. cause you aren't on any of the traditional treatments. I had little or no options, and a very BRAVE GI.

 

[ITSMEAGAIN]

Thanks Kev i really appreciate the help. I have an appointment with my dr's coming up. I'm gonna arm myself with some info first to see if i can get some possible trial run here.