So I was on Humira for 7 months and experience drastic hair loss! I stopped taking Humira in August and I am wondering if anyone has any info on this. How long will it take for the hair loss to stop and grow back? I'm also losing eyebrows and lashes. I use hair loss shampoo and take biotin every day. Any thoughts would be greatly appreciated. Thank you!!
Humira and hair loss
- Thread starter Bre
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Help Support Crohn's Disease Forum:
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Hi Bre. :welcome: to the forum. I have been on Humira for 2 years now and have not heard of hair loss as a side effect of the drug. However, I googled Humira Hair Loss and found an interesting post on drugs.com. Here it is. http://www.drugs.com/answers/hair-loss-humira-363542.html.
It sounds like if it is a side effect of Humira, it is not very common.
Good luck to you and I hope you find this forum a helpful place.
It sounds like if it is a side effect of Humira, it is not very common.
Good luck to you and I hope you find this forum a helpful place.
Thanks for your reply. That is strange because I read on several websites that it is a common side effect. Also the hair loss began after I started humira so I'm hoping now that I'm off it it'll stop!! I miss my hair 
I've had blood work for everything under the sun and everything was normal.
I've had blood work for everything under the sun and everything was normal.
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- Mar 12, 2010
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No hair loss to report, but then again I did not have much to begin with.
I have never heard of hair loss as being a side effect of H.
However I can say that stress is a huge reason for hair loss.
Just offering my support.
Best of Luck
I have never heard of hair loss as being a side effect of H.
However I can say that stress is a huge reason for hair loss.
Just offering my support.
Best of Luck
It is listed as a side effect of humira and I have read other peoples stories about it. I know stress can cause hair loss as well, but to lose half your hair from stress? And do you think stress can make you lose eye lashes and brows? I am trying to lessen my stress as much as possible. Started exercising again which helps me. Thanks for the suggestions!
Hi Bre,
I have had hair loss as well with Humira. Not drastic, but noticeable. Everytime I brush my hair, tons of strands in the brush. Nevermind the shower…
I started juicing for breakfast daily. Spinach, carrots, cucumber and either apple or orange. It has slowed down tremendously, now I just see natural loss. Spoke with my GI about this and the juicing is great because my body is able to absorb all these nutrients via the liquid that I normally don't get because of crohns.
Everyone is different, but I thought I'd try this because it wasn't putting any additional meds into me and the Humira seems to be working on my fistulas.
Good luck.
Kelly
I have had hair loss as well with Humira. Not drastic, but noticeable. Everytime I brush my hair, tons of strands in the brush. Nevermind the shower…
I started juicing for breakfast daily. Spinach, carrots, cucumber and either apple or orange. It has slowed down tremendously, now I just see natural loss. Spoke with my GI about this and the juicing is great because my body is able to absorb all these nutrients via the liquid that I normally don't get because of crohns.
Everyone is different, but I thought I'd try this because it wasn't putting any additional meds into me and the Humira seems to be working on my fistulas.
Good luck.
Kelly
I started drinking shakes for breakfast as well. But mine consists of a banana, protein and almond milk. I should throw some spinach in there as well. I try to eat spinach every day. I actually stopped humira 2.5 months ago so I'm hoping the hair loss will stop. It seems to have slowed down some. I definitely think our bodies absorb liquid better. I just can't imagine an all liquid diet. I'm glad to hear humira is helping you. It did put me into remission but I was having way too many side effects. I've lost half my hair, easily. And it's absolutely devastating thank you for your reply
thank you for your replyHow is the crohn's since you've been off Humira? Are you on any other medications?
I can't imagine how you feel. It devastated my Mom when she went through chemo and she still has only got half of it back. I will tell you, what I tell her, that her hair only masked her true beauty. Honestly, I think she is absolutely beautiful!
I can't imagine how you feel. It devastated my Mom when she went through chemo and she still has only got half of it back. I will tell you, what I tell her, that her hair only masked her true beauty. Honestly, I think she is absolutely beautiful!
So far so good!! I am on mezavant (lialda) I believe is the name of it in the states. I was ok asacol for 3 years and did well on it. I don't expect to get all of my hair back. All that matters to me at this point is that it stops. It's kind of nice not having super thick hair like I used to. If you didn't know me you wouldn't know. I have no bald spots thus far! Chemo would be very tough. Thank you for your kind words!! I couldn't imagine losing all of my hair though
I started drinking shakes for breakfast as well. But mine consists of a banana, protein and almond milk. I should throw some spinach in there as well. I try to eat spinach every day. I actually stopped humira 2.5 months ago so I'm hoping the hair loss will stop. It seems to have slowed down some. I definitely think our bodies absorb liquid better. I just can't imagine an all liquid diet. I'm glad to hear humira is helping you. It did put me into remission but I was having way too many side effects. I've lost half my hair, easily. And it's absolutely devastating
Hi Bre. Iv been on humira for aprox a year and a half, and in the past couple of months, have had heaps of hair loss. I had a horrid bout of eczema, and had sores all over my scalp, and started loosing handfuls of hair. I never had eczema before, and that also can be a side effect of humira :/ I started taking folic acid, and it seemed to lessen the hair loss, then recently I'm noticing more hair loss, so just started folic acid again. I have very thick hair, normally can barely wrap my fingers around my hair, and its 1/3 what it used to be. My gi said its lack of nutrients so I'll start taking vitamins again, but juicing sounds great too, as if I have too much fiber my bowels don't cope well. I think like with azathiroprine, it takes like 6 months before humira is completely out of your body- or 3- not sure, but maybe try folic acid. Hope it helps
Hi Irene!
I was on azathioprine for 5 months and I think that's when the hair loss began..I came off that hoping it would stop but was immediately put on Humira and the hair loss just continued!! I am sorry to hear about your hair loss..it is so upsetting to say the least! I do take a B12+folic acid supplement, but I must admit that I have been forgetting lately!! I also take 5000mcg of biotin, just started that a week ago so hoping that helps soon!! At first I thought it was the lack of nutrients causing the hair loss but I'm not having any crohn's symptoms at the moment (knock on wood) so I'm hoping it's not that. I also had major eczema after starting humira!! I would get the sores and major dandruff. That seems to be slowing down a bit now..I even get it in my eyebrows!! It is crazy how may bad side effects a drug can cause!!! Have you had your zinc levels checked? I was deficient in zinc for a while which can also cause hair loss so I started supplementing and now my level is in the normal range but the hair is still coming out so I will continue taking the zinc. It's a pain taking all of these vitamins!! I hope things turn around for you. As if it's not bad enough to have crohn's, we also have to go through hair loss..not fair!! best of luck to you!
I was on azathioprine for 5 months and I think that's when the hair loss began..I came off that hoping it would stop but was immediately put on Humira and the hair loss just continued!! I am sorry to hear about your hair loss..it is so upsetting to say the least! I do take a B12+folic acid supplement, but I must admit that I have been forgetting lately!! I also take 5000mcg of biotin, just started that a week ago so hoping that helps soon!! At first I thought it was the lack of nutrients causing the hair loss but I'm not having any crohn's symptoms at the moment (knock on wood) so I'm hoping it's not that. I also had major eczema after starting humira!! I would get the sores and major dandruff. That seems to be slowing down a bit now..I even get it in my eyebrows!! It is crazy how may bad side effects a drug can cause!!! Have you had your zinc levels checked? I was deficient in zinc for a while which can also cause hair loss so I started supplementing and now my level is in the normal range but the hair is still coming out so I will continue taking the zinc. It's a pain taking all of these vitamins!! I hope things turn around for you. As if it's not bad enough to have crohn's, we also have to go through hair loss..not fair!! best of luck to you!
