Hyperbaric chamber

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bigtruck

bigtruck

Joined
Feb 9, 2009
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hyperbaric chamber

:cool2: hi everyone i havent posted in a while, i've been back in hospital and had another 2 setons put in place thats now 3 in total! Ihave been reading up about oxygen treatment to help heal them it's called hyperbaric oxygen treatment i believe and supposedly has good results,i was just wondering what others thoughts was many thanks Ryan. :ymad: diagnosed in 96 various surgery for abcesses, rescetion in 98 with temp loop ileostomy for 1 month currently on 150mg of aza and co codamol no tummy trouble just complex peri-anal disease.:depressed:
 
my mom was in the wound clinic for a while for a wound she had, she had a wound vacc that i helped with, but when i would go with her to the wc they had a hyperbaric chamber there and i was talking with one of the nurses about it and it sounds really neat^-^ also she said she has seen cases that she thouught wouldnt heal for 6+months and they healded in as little as 2 because they did the hyper chamber, so if you were wanting to try it i would! and they said it wasnt painful at all and they would have a tv for you to watch while you were in it or music to listen to!
 
By the way any tips on dealing with fistula and or seton would be greatfully accepted! 13 years with these fistula and ready to run away!!!!!!!!!!!!!!!!
 
Hey Ryan,

I am Northern Irish. I was brought up in Antrim and my parents now live in Larne.

I currently live just outside Cambridge and in the coming couple of months hope to be moving to Leicestershire (where my fiance (sp?) is).

I get back to see family a couple of times a year.

I have never suffered from fistula thankfully but do suffer from really bad boils and abcesses and have done so for many years so can understand where you are coming from.

Hope you get some relief soon. Feel free to touch base anytime.

Thinking of you.
 
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i know larne well i get the ferry from there to fleetwood every sun night to spend the week working in uk:ybatty:
 
thanks for that mike i suppose once it started to heal the setons could be removed i will have to get in touch with my gastro doc and see what he says, after 13yrs the fistula are the only part of my crohns not under control, i had great results with infliximab in the past but it caused problems with my heart, :ymad: therefore they wont use any anti tnf treatment. cheers for your help Ryan.
 
Yes my parents go down some evenings and watch the ferrys come and go. The Leader (cant remember the other one that does the trip to fleetwood) is one they watch.

Duncan and I do the Cairnryan to Larne trip (last over in Oct 08) and hoping to do it again soon as the last couple of times over this year I have had to fly even though I prefer the ferry. I also like it because we are at my parents within 5mins of coming off the ferry.

The fleetwood trip is quite a run isnt it? Late leaving and early start the other side due to the tidal patterns I believe. Going by your username here (rightly or wrongly) are you driving HGV's then?

Hope you are doing ok.
 
bigtruck said:
By the way any tips on dealing with fistula and or seton would be greatfully accepted! 13 years with these fistula and ready to run away!!!!!!!!!!!!!!!!
Click to expand...

hey ryan
yup my crohns involves complex perianal disease as well. i have done the setons, as well as another type of seton that is a thicker rubber thread, and drains called Penrose Drains. have you heard of those?
do your fistulas drain a lot? is it very infected in there, or more so just an open tract?
there is another treatment, relatively new i think, its called Fibrin Glue. however, they cant use this stuff when youre very infected, you have to be mostly clean in there. the easiest way to explain it is....you know that certain type of insulation that they squirt along windows? it is kind of foam-like and you squirt in in a hard to fit space and the foam expands to fill the nooks and crannies?
fibrin glue is much like that. they squirt a teeny bit of it into the fistula tract, and slowly over time it wears down, but see this gives the sides of the tract a chance to heal closed. by the time the glue is completely dissapated, the hope is that the tract will have closed in, like a wound healing from the inside out.
does that explain it? its really hard to explain lol, but i hope you get it! if not maybe there is some info about it on the web.
ive had the fibrin glue done a couple times, and unfortunately it didnt work in my case, but there are cases where it has really helped patients.

as far as managing the fistulas and setons...do you take sitz baths? that always helped me witht the soreness and it defin itly helps to wash away the infecty-messy stuff. also ALWAYS make sure that the knot of the seton is on the outside. if the knot sits INside the tract of the fistula it hurts! you can just slide the seton to adjust where it sits.

ok well i hope that helps a bit, if you have questions about all that ask away ok?
 
soupdragon69 said:
Yes my parents go down some evenings and watch the ferrys come and go. The Leader (cant remember the other one that does the trip to fleetwood) is one they watch.

Duncan and I do the Cairnryan to Larne trip (last over in Oct 08) and hoping to do it again soon as the last couple of times over this year I have had to fly even though I prefer the ferry. I also like it because we are at my parents within 5mins of coming off the ferry.

The fleetwood trip is quite a run isnt it? Late leaving and early start the other side due to the tidal patterns I believe. Going by your username here (rightly or wrongly) are you driving HGV's then?

Hope you are doing ok.
Click to expand...

hi there yes its the leader every sun night the other one is the pioneer usually a 9 hr crossing and yep you guessed right im a truck driver been doing it 14 yrs from i was 21, not alot of fun with the crohns sometimes lol
 
Hi there kello thanks for your suggestions, i have quite a bit of leakage but no infection at the min, its hard to do the sitz bath thing when im on the road so much, but i wash the area 2-3 times a day. I discovered what you said about the seton knot pretty quickly i had to get my wife to pull it out! the things women have to do! lol. hope your keeping better since your op thanks again.:ybatty:
 

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