I truly know what a miracle drug is now...

[Mike]

It has been about a month since I started Remicade. WOW

I have more energy, not as much nausea, and am only running to the bathroom half the times I did a few months ago. I still have the nausea issue and only take in about 1500 calories a day but I feel so much better. I have also changed my diet a little after reading some things on here (around 100 carbs a day for example).

Well thanks for so much advice and helpful info, it is finally starting to pay off.

 

[GutlessWonder86]

:thumleft::thumleft:That is great to hear!!! WOOHOO!!! I love to hear it when a crohnie starts to feel great and go into remission. Have a great summer!!! hugs, GW

 

[saidinstouch]

Try adding in some ginger capsules (500-550mg) twice daily with lunch and dinner. I actually started having nausea issues after starting cimzia and since I added in ginger a month ago, I have stopped taking anti-nausea medication completely and feel zero nausea when I remember my daily ginger. It is also a good supplement to take anyway, so its a double win to try it.

 

[canope]

That was my first experience with Remicade, too. Miracle drug. I'm now on my third remission induction series, and this time - to my sorrow - it is not working. I think your body can start creating antibodies to the Remicade or something like that. They give me prednisone in the IV before the Remicade to prevent that, but I guess it can happen anyway.

(Sorry to be a downer. Maybe I shouldn't have posted this.)

 

[Astra]

Well done Mike! hope it keeps working for you!
xxx

 

[ameslouise]

Congrats! It's nice to hear good news like that!

Good luck and best wishes for continued success wit h the Remi.

- Amy

 

[Mike]

That was my first experience with Remicade, too. Miracle drug. I'm now on my third remission induction series, and this time - to my sorrow - it is not working. I think your body can start creating antibodies to the Remicade or something like that. They give me prednisone in the IV before the Remicade to prevent that, but I guess it can happen anyway.

(Sorry to be a downer. Maybe I shouldn't have posted this.)

No issue, I understand this can happen. I'm just riding the success right now and hoping it lasts. It's been about two years since I have felt this good.

 

[canope]

I hope it lasts for you, too!

 

[poolside]

So good to hear, I used to take Remicade and it made my life so much easier. I took it for over 5 years.
I wish I could go back on it, but I can't as I had a run-in with a rare cancer recently. Cancer is gone and the good ol' Crohn's is rearing it's ugly head but they won't let me go back on the biologics as they don't know enough about them to say whether that is what caused my cancer.
I read all of your posts about Remicade and Humira and I am a teeeeensy bit jealous that I can't give it a go again! But I am happy for you all with your success with the drug. Keep it up!

 

[canope]

It's starting to look like I can't use Remicade again either, because of cost. I may not have started making antibodies - could be I just need more doses - but I'll never know. I have new insurance now, and the drug portion of the policy is terrible. Between my co-insurance for the drug and my co-insurance for the administration of the drug, it would cost me $2118.12. I don't have that - my ability to work is quite impaired at the moment.

Basically, BC/BS has decided they would rather pay for a colectomy than Remicade.