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[nekogirl7]

Hi, I'm 17 years old and I have Crohns. I really don't remember when I was diagnosed, but I do remember the 14 vials of blood they had to take to confirm the diagnosis!

I've had 2 endoscopies and 2 colonoscopies. The last one I had, my Crohns Dr found at least 2 more spots with Crohns. Whoop-pie.

He wanted to put me on Remicade, and when my mom and I read the serious side effects, we were literally crying. This drug gives teens lymphatic cancer.

Now, I'm one of those people that if there's a drug where something bad happens only to 2 people out of 10...I'm one of the two.

Luckily, my Dr read the side effects (cuz my pediatric Dr didn't bother to read them before sending us in a frenzy!) and re-read my reports and decided I'm not quite there yet for the Remicade. He put me on a new drug, which is a steroid, but the side effects are much less....intimidating.

Also, my other Dr (the one I go to for check ups and shots), thought it;s be a good idea to start removing gluten from my diet.

So everything is awfully overwhelming now. I have to watch what I eat
(and I'm not heavy either...so trying to what what I eat should be fun), I can't have greasy food anymore cuz that upsets me, no caffeine *cries*, no dairy, and now no gluten....WHICH IS IN EVERYTHING!!!

So between the list of things I can't have for my Crohns and the list of things I can't have and the list if things that have gluten in them....I feel like I'm left with nothing!!

I really don't mean to complain, but I've just felt really alone with all this and I just have no one else who understands what I'm going through...

 

[Gabismommy]

I am sorry you are having to cut your diet so much. I have tried to avoid greasy foods just because I have heard it helps but my doctor hasn't made any dietary suggestions. The medications they have me on so far are Prednisone (sterroid) and another pill called Asacol but it is super expensive and my insurance wouldn't cover it. So we may be changing me off of it when it runs out..

 

[nekogirl7]

I tried to eat not so greasy foods, but it just didn't work...so I ended up not having it at all and switching to Subway. And I understand the price. My new medicine I'm one, without insurance, would have been $1300! That's just ridiculous! How are you suppose to get better or feel better if they price them so high that you can't even afford to take them??

 

[Gabismommy]

Subway is amazingggggg!! Ah, now I want some really bad. Haha. These sterroids make me want to eat everything in sight. I know one thing I can't tolerate anymore is spicy foods and I LOVE spicy foods and Taco Bell which makes me feel like I'm absolutely dying afterwards now even if I get stuff that isn't spicy at all. It sucks because I work in fast food currently and there is barely anything I can eat when I am at work now.

As far as the medicine, exactly!! It seems to be working great which is awesome but what if the cheaper kinds he is talking about don't? It makes me really nervous. I don't want to get that sick again when I am just now starting to feel ALMOST normal again!!

 

[nekogirl7]

I know what you mean about Taco Bell!! It seems like I can only eat the chalupas (or however you spell it), but even a few minutes after eating that I'm about dying!! And I love Taco Bell!! Especially cuz they have Baja Mountain Dew!! T-T

I hope the less expensive drug goes alright. The only time I feel just about normal is when I eat something that doesn't hurt me. Which is rare. I hope everything goes well with that!!

 

[Gabismommy]

I know! That Mountain Dew is really good but I only drink diet drinks now. Even just plain hard tacos made me sick the last time I went so I guess I need to just avoid it. It is pretty much my favorite restaurant though.

Thank you, me too. Haha. I feel okay when I eat BLT sandwiches.. I know that seems random but they don't seem to bother my tummy much. Do you think you could eat them? Bacon is probably out of the question isn't it?

 

[nekogirl7]

Oh no!! Bacon doesn't bother me (oddly enough). I love it, especially in Mcdonalds double bacon cheeseburgers...which, I can't have any more. :yfrown: I love Mt Dew Voltage and Baja....but because the caffeine hurts so bad, I can't have it anymore. I can only have caffeine free pepsi and regular sodas.