Infliximab (Remicade) experience in the UK

[Matt645]

My Crohns doesn't effect my lifestyle too badly but after 15 years it's never really gone into full remission and the doctor thinks it would be dangerous to carry on as I am because the cancer risk increases with the constant inflame>heal>scar process.

She's put me on prednisolone (boo) for 2 months to get the inflammation under control but after that she wants me to go onto Infliximab.

Anyone in the UK having this treatment? Is it as good as it appears? Like I said I never really feel like I suffer to the extent of some of you guys but maybe I've just gotten used to the daily cramps, D and smelly farts. :biggrin:

 

[robbo87]

My Crohns doesn't effect my lifestyle too badly but after 15 years it's never really gone into full remission and the doctor thinks it would be dangerous to carry on as I am because the cancer risk increases with the constant inflame>heal>scar process.

She's put me on prednisolone (boo) for 2 months to get the inflammation under control but after that she wants me to go onto Infliximab.

Anyone in the UK having this treatment? Is it as good as it appears? Like I said I never really feel like I suffer to the extent of some of you guys but maybe I've just gotten used to the daily cramps, D and smelly farts. :biggrin:

Hi, I started on Infliximab earlier this year and it was unbelievable how well it worked. due to unforeseen circumstances I am not taking it any more but all I can say is for the 2-3 months i was taking it I had never felt better.

 

[Allystyle]

Humira was easier for me as u just inject yourself at home!

Infusions, well they could rarely get the venflon into a vein on me so couldn't get hooked up to a drip.

I found azathioprine really worked well for a long while!

 

[Cinny]

Im on azathioprine and been having infliximab infusions every 12 weeks for about 5 years.It worked really well with no side effects for me but recently ive been feeling ill a bit before the drips so it got reduced to 10 weeks and now 8.

 

[AlexJ]

I had my first infusion of infliximab on the 16th of August 2011, and to be honest I don't feel any different after having it - although I was told it can take six weeks to become fully theraputic so it may not have kicked in yet

 

[Allystyle]

I didn't notice much difference for mths but when I missed a dose I sure did notice how well it was working then!

Give it time x