Jaedyn update and MIC-key surgery scheduled

[CarolinAlaska]

Poor Jae can't get a break. She has been recovering from illness after illness for the past 2 weeks. For 9 days she had a headcold. She was pretty much over it for one day then the next night got the stomach flu with vomiting and diarrhea for 3 days. I thought she was finally over it last night, so we started her first 6-mp. I guess she wasn't quite over it, because she had to stop her feeding during the night due to abdominal pain and nausea :frown:

Last week we were pleasantly surprised to find out that Jae had gained 2 lbs. This week we find that she has lost them again. :yrolleyes:

Anyway, it is time for her NG tube to be removed. It seems pretty clear that the EN is doing her good, even if she hasn't reached remission. She is only one week from finishing her EEN, but will need to continue supplemental feeding. Today we decided that since replacing her NG tube each month isn't going to work well for her (won't do it without sedation), that the best option for her will be to get a MIC-key button. I think it is being scheduled for Monday for placement. :ysmile:

Oh, and poor Jaedyn got two vaccines today... pray she doesn't get seizures, we've often wondered if vaccines were a trigger for her seizures in the past... now I'm more convinced the seizures were triggered by malnutrition...

 

[Crohn's Mom]

Goodness it sounds like a rough couple of weeks around your home!

I so hope things start getting better for Jaedyn soon! :hug:

 

[Niks]

Poor girl, she's had a tough few weeks.
Hopefully things will settle for her.

(((Hugs))) :ghug:

 

[Farmwife]

Sorry to hear about the sickness.
I'm interested about the Mickey-button.
Let us know how it goes.


HUGS

 

[upsetmom]

:ghug:..Poor Jaedyn i hope things settle down for her.

 

[Dexky]

Sorry she's having such a rough time Carol! I hope things are better for her today. I'm sure as a teenager, the mickey button will be better for her.

 

[Devynnsmom]

(((((hugs))))) I'm sorry she's been having a rough time I hope she feels better real soon.

 

[DustyKat]

Good luck with the op Monday! :goodluck: I hope all goes well, bless her...:hug:

Sending loads of well wishes that she is starting to feel better and all has gone well with the immunisations.

Dusty. xxx

 

[Clash]

I'm sorry Jae has been having a hard time as of late. I do hope the surgery goes well and she is back on top quickly!!:ghug:

 

[CarolinAlaska]

Jaedyn's surgery has been moved to April 10 due to the pediatric surgeon being out of town.

 

[izzi'smom]

UGH...I hate waiting. Hoping things go smoothly until then, and wishing you tons of luck with the placement...:heart: