Hello, well I am off the steroids now. I didn't feel like they did anything and I probably felt my worst in terms of crohns symptoms like cramps and pain while on 40mg of prednsiolone. It makes no sense. Now I am just on 50mg of azathioprine and my symptoms are still some wind in the evenings and sporadic pain. I have good and bad days it's completely unpredictable. All my blood tests have normalised where they previously showed I was fighting inflammation, they are now all in normal range. I don't feel normal yet though. I am still trying to figure out if I am experiencing partial blockages when I get these cramps, rumblings, bloated and wind. My intestines are getting backed up but I don't known if that = some kind of blockage. I have never been to hospital for it. I just wait it out. The only time these symptoms went completely away was after surgery. I hope this time I can sort it out with the meds. After you have surgery all these symptoms will go away for you, hopefully for several years.
its so weird how TI crohns can cause these pains high up in the abdomen and that bloated feeling.