Losing a year

[CrohnsHobo]

This year has been a total loss and one I hope to forget.

Subtotal colectomy in April, prolapse in June, kidney stone in July, missed 4.5 months of work.

No scope shows severely active Crohn's, and Erythema nodosum on both legs and now my back.

Going back to work it feels like life passed me by, people got promoted, had to turn down job opportunity, keep mising at least a day a week for Dr. appt, been on bed rest the last week. Have not really seen any friends in months. Feel like I can't get back up to the speed of life I had just 9 months ago and there is no end in sight.

So tired of being sick, tired of talking about being sick, tired of hospitals. Just numb to all of it now. Sort of just don't care anymore. What this disease has planned for me is out of control at this point, I am just stuck for the ride, but I just don't enough anymore to do anything but sit to and see what happens. Hoping to have a job and a social life again someday.

Just a rant, this year has burned me out

 

[Thermo]

Sounds exactly like me, while I have not had the exact surgeries as you I can't get back into things after mine. Everything just seems to be different and I can't engage myself back into life, I feel like a foreigner in my body. It might be all in my head but I understand what you're saying and agree fully. The only thing I tell myself everyday is 2013 will be better, good luck

 

[Samboi]

I so relate Crohns Hobo.
Bad flare last year led to ileostomy in Jan.
Took six months to recover.
9 hospital admissions in less than a year.
Kidney stones. Gall bladder removal.
Missed a friends 60th, besties birthday, an engagement and two weddings.
Often had to bail at the last minute.
Hard getting back in to being Social - still fatigued a lot - which is weird for me.

Upside - Humira is finally working.
Got my dream job - 3 days per week.
Had a two week holiday in Cambodia - which was a stretch physically - but I survived it.
Reversal on the cards for Dec.
And I learnt from you about some things I can do whilst housebound - so thank you - you have added to my collection of hobbies.

Looking forward to a fresh start in 2013.
Never want a repeat of 2012.

 

[soretum]

I can relate, sometimes it just seems like there's no way out of this pointless f*****g disease.....everyone else is moving forward with their lives, having babies, getting married, travelling, buying houses while I seem to be measuring how good my day has been by whether I managed to make it to work, how many times I had to burn tracks to the loo, whether I managed to eat anything, get out of my pj's....whether I managed to actually just get out of bed at all!!

And as for erythema nodosum, I recently had a good dose of them on the soles of my feet among other places, that was fun....it's the disease that keeps giving and giving!!

Hang in there buddy, what doesn't kill us makes us stronger, or so they say! xx