Medication??????
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I kind of felt the same way you did, but if I would have had no other option I probably would have used Imuran to help my Crohn's.
I did stumble onto Low Dose Naltrexone which I am very happy with. The minimal side effects are insomnia which usually goes away after a week or two.
The good side effects are protection from Cancer other autoimmune diseases.
I would consider taking LDN even if I did not have Crohn's just because it is so safe and has so many benefits.
Dan
I did stumble onto Low Dose Naltrexone which I am very happy with. The minimal side effects are insomnia which usually goes away after a week or two.
The good side effects are protection from Cancer other autoimmune diseases.
I would consider taking LDN even if I did not have Crohn's just because it is so safe and has so many benefits.
Dan
My Butt Hurts
Squeals-a-lot!
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Hi Clubber-
I know that my flares have been so bad, I would not be able to get through them without medication. Before Crohn's I was the type who wouldn't even take a Tylenol for a headache. Now I will take just about anything to get my symptoms under control.
I have taken sulfasalazine, asacol, pentasa, Imuran, ciprofloxacin, metronidizole(sp.) Humira, and Remicade plus various other things I had to stick up my butt.
NONE of these medications gave me any side effects at all. The only thing that happened was they quit qorking after a while. Prednisone gave me the side effect of hunger, energy, and a tiny bit of acne, but it worked really well for me, and I liked being on it.
I know some people prefer to try and control their Crohn's with diet - and some people even say they can do it with diet alone, but I honestly don't think mine could have been controlled that way. I needed the meds to get it under control.
Everyone reacts to meds differently. I didn't want to try the Remicade at ALL, but I am so glad I did. I feel pretty good right now.
Good luck, feel better.
I know that my flares have been so bad, I would not be able to get through them without medication. Before Crohn's I was the type who wouldn't even take a Tylenol for a headache. Now I will take just about anything to get my symptoms under control.
I have taken sulfasalazine, asacol, pentasa, Imuran, ciprofloxacin, metronidizole(sp.) Humira, and Remicade plus various other things I had to stick up my butt.
NONE of these medications gave me any side effects at all. The only thing that happened was they quit qorking after a while. Prednisone gave me the side effect of hunger, energy, and a tiny bit of acne, but it worked really well for me, and I liked being on it.
I know some people prefer to try and control their Crohn's with diet - and some people even say they can do it with diet alone, but I honestly don't think mine could have been controlled that way. I needed the meds to get it under control.
Everyone reacts to meds differently. I didn't want to try the Remicade at ALL, but I am so glad I did. I feel pretty good right now.
Good luck, feel better.
prednisone, imuran, ciproflaxin, metroxindale (dont hate my spelling...), ratadine, remicade....Im missing one I know I am....and yes the side affects aren't good but those are only possible side affects and with the pain I get from the Crohn's if I dont take them...the risk is worth the relief for me...
I also keep a close eye on what I eat in addition to taking all of my meds and if I be a good girl and do everything right then maybe I won't get any more fistulas for a while. PLEASE JESUS. lol
I have to say the remicade and imuran you need to be careful around any sick people (ie. My mother in law is currently in the hospital getting treatment for leukemia and she contracted pneumonia while at the hospital so I can't go visit her unless we both wear masks) because if I catch something I have to go to the hospital for antibiotics thru an IV and delay my remicade treatments and since I feel good after them, I in no way want to delay them...
Again...if for a little bit of caution (taking things to help prevent the meds side affects *Supplements, precautions*) and managing my diet better, then I can avoid the hospital visits or fistulas or SURGERY then I am all for it.
I also keep a close eye on what I eat in addition to taking all of my meds and if I be a good girl and do everything right then maybe I won't get any more fistulas for a while. PLEASE JESUS. lol
I have to say the remicade and imuran you need to be careful around any sick people (ie. My mother in law is currently in the hospital getting treatment for leukemia and she contracted pneumonia while at the hospital so I can't go visit her unless we both wear masks) because if I catch something I have to go to the hospital for antibiotics thru an IV and delay my remicade treatments and since I feel good after them, I in no way want to delay them...
Again...if for a little bit of caution (taking things to help prevent the meds side affects *Supplements, precautions*) and managing my diet better, then I can avoid the hospital visits or fistulas or SURGERY then I am all for it.
Thanks for the advise guys i didn't exactly turn down the med's i just said i would take a chance as it was my first episode and see what happened next. Now i know the signs i know i am about to have another flare up i went and had an endoscopy a couple of days and from the pictures it definitely looks angry
I dont really know a great deal aboput crohns other than the affects it has on my day-day living. The NHS here in the UK isn't the greatest. I got told about a type of pill which would have a 1-in-3 chance of working, the side affect were that if it didnt work there was a chance it could eat away at my bone marrow leaving me with very little immune system, hence my reluctence to try it!
Reading all of your comments there seems to be loads of alternative meds available although i wouldn't know this as my Doc only offered me the one and didn't really give me any idea there was any others
Crohn's is still very new to me i don't really know a lot other than the feelings and pains i got last time. Unfortunately i don't know any of the correct names for things ether so any help is great, i mean i read a lot about fistulas but i have no idea as to what these are other than they don't sound very nice.LOL
I dont really know a great deal aboput crohns other than the affects it has on my day-day living. The NHS here in the UK isn't the greatest. I got told about a type of pill which would have a 1-in-3 chance of working, the side affect were that if it didnt work there was a chance it could eat away at my bone marrow leaving me with very little immune system, hence my reluctence to try it!
Reading all of your comments there seems to be loads of alternative meds available although i wouldn't know this as my Doc only offered me the one and didn't really give me any idea there was any others
Crohn's is still very new to me i don't really know a lot other than the feelings and pains i got last time. Unfortunately i don't know any of the correct names for things ether so any help is great, i mean i read a lot about fistulas but i have no idea as to what these are other than they don't sound very nice.LOL
Thanks, you are right my main purpose for joining the forum is to find out more from people who are in my position. Its one thing reading a document written by some professor but hearing it from the horses mouth so to speak is going to help me ask influential questions.
Thank you
Thank you
- Joined
- Feb 2, 2009
- Messages
- 29
Refusing Meds
Clubber I know exactly how you feel. I have been very stubborn about taking meds for my crohns for years. Mostly because it is hard to take so many pills so often every day. Plus, when I am feeling better I don't think about it. It is when a flare up hits that I try to do damage control. The problem is that by handling it like that I have created more problems for myself.
My last flare caused my doctor to get very angry with me. I actually thought he was going to refuse to continue treating me. He put me on Entocort which I have been on for two weeks. Not really feeling the benefits yet. I am also afraid of gaining weight. After a test in April my doctor plans to put me on Remicade which I have already made up my mind I cannot do. My husband is completely against it because the risks cause worse problems then the crohnes.
My mother almost died from crohnes when she was thirty years old. She developed paritinitis and was given an iliostomy so I do understand the disease. She did not have the benefit of medicine that we all have today.
I am trying the entocort to get rid of the inflamation and then hope to use pentasa or Lialda again. When I have a flare, I will revisit the entocort and so on....
You may have to experiment with different options until you find one that fits your lifestyle or in my case, my forgetfulness and stubborness!
Good luck
Clubber I know exactly how you feel. I have been very stubborn about taking meds for my crohns for years. Mostly because it is hard to take so many pills so often every day. Plus, when I am feeling better I don't think about it. It is when a flare up hits that I try to do damage control. The problem is that by handling it like that I have created more problems for myself.
My last flare caused my doctor to get very angry with me. I actually thought he was going to refuse to continue treating me. He put me on Entocort which I have been on for two weeks. Not really feeling the benefits yet. I am also afraid of gaining weight. After a test in April my doctor plans to put me on Remicade which I have already made up my mind I cannot do. My husband is completely against it because the risks cause worse problems then the crohnes.
My mother almost died from crohnes when she was thirty years old. She developed paritinitis and was given an iliostomy so I do understand the disease. She did not have the benefit of medicine that we all have today.
I am trying the entocort to get rid of the inflamation and then hope to use pentasa or Lialda again. When I have a flare, I will revisit the entocort and so on....
You may have to experiment with different options until you find one that fits your lifestyle or in my case, my forgetfulness and stubborness!
Good luck
i know exactly what you mean i don't know if it is stubbornness or just i put it to the back of my mind so much i just forget about it until it kicks me again. I need to do something now and as i am learning more i aim to do something about it it is just making the effort to find the time.
thanks for the advise everyone i am awaiting the results of my biopsy and then i will have another appointment with my Doc to discuss what's available to. I already have a long list of questions for him so again thank you all.
I will keep you up to date once I know a little more.
I will keep you up to date once I know a little more.
unfortunately the best meds for controlling fistulas lower your immune system...but risk an infection and get antibiotics at the ER when you get one...or be unable to sit on your bottom or move without wanting to die...My choice was simple. I can understand your concerns tho. It's a scary thought at first.. but make sure you at least start taking some steroids or something similar to get your inflammation down.
I look forward to your results. Good luck Clubber.
I can understand your concerns tho. It's a scary thought at first.. but make sure you at least start taking some steroids or something similar to get your inflammation down. I look forward to your results. Good luck Clubber.
