Methotrexate Only?

[scrapper1264]

Has anyone else's child been on methotrexate only? While we are waiting for approval on the cimzia, my son's dr wants to put him on this to tide him over since he is not on anything for his CD. His main painful symptom is his skin tag right now. We think the change in his diet (organic, smoothies, almost gluten free, cut way down on corn syrup products) has helped him with his belly pain since that is not a big issue right now.

Thanks for any help!

 

[DustyKat]

Sorry no Methotrexate in our camp and I don't recall off the top of my head anyone else particularly mentioning it. Maybe repost the question in the treatment section and hopefully you get some responses there from members that may have taken it when they were younger, could be worth a try??

Dusty.

 

[Dexky]

AZMOM, Julie's Claire was on it back when she thought she was only fighting JRA I think. She may have some insight for you!

 

[cowgirlnz]

Hi. My six year old son is on Methotrexate at the moment and nothing else other than a restricted diet. He's been on it for nearly six months. No bad side affects, but he is very well monitored on it. (Weekly blood tests for the first month, tapering off to once every six weeks now).
He has a weekly injection which is quite painful - although the pain lasts no more than a minute and there's no problems afterwards - he just gets on with his day.
I guess it's been reasonably successful - but after six years dealing with Crohn's our idea of success is relative. He's not getting any stomach pains, and he's had no days off school this year. But he still gets diarrhea several times a day, grows slowly and lacks stamina. I had hoped for better, but am grateful it's not worse...

I hope that helps.

Gillian.

 

[scrapper1264]

Thanks everyone! Called the doctor yesterday and they are working on it. They didn't say anything about it being painful though, I thought that was just humira. Learn something new every day with this disease!!

 

[cowgirlnz]

My son always has an Emla patch on for an hour or so before the injection - so the actual needle going in doesn't hurt. But the medication itself stings once it goes in. Some days it seems to hurt more or last longer than others - probably to do with the location of the injection, but we haven't managed to figure it out yet. We have a nurse who comes to our home, or the school, to administer it. She says the older kids who have it describe it as the equivalent of a bee sting - but the pain subsides much quicker.
Ranger is ok about the whole thing until a minute or two before the injection, and then starts looking for every excuse possible to get out of it! But he gets over it again pretty quick.

Good luck with it all.