I have had crohn's for about 6 years. Ulcer is on the terminal illeum/jejunum area. Basically cramping and abdominal pain after bowel movement have been my biggest problems. I am on Pentasa. Recently I had some abdominal pain so I decided to make an appointment with my GI. Could only get in to see the nurse practitioner. He said since it had been 5 years since I last had the pill cam it would be a good idea to do a CT enterography. He called today to say that i had a big stone in my gall bladder, the liver was fine and I had mild inflamation in the same area that I had before. No thickening of the wall. Basically, it looked like it did five years ago. I told him my ab pain was better and he said if it continued then I should try entocort. I said the ab pain only lasted a few weeks and asked if I could try Librax. He said that only masks the problem and not many people use it anymore. I thought the librax would be good for anxiety as every time I get any pain I keep thinking the other shoe is going to fall and I am going to be running to the bathroom 20 times a day like I read about from some crohns sufferers. I told him that he and said that if I do not have that symptom now I probably wont...that now all chrons patients have that. My GI told me the same thing a few years ago but for some reason I don't believe it. This guy also told me that Pentasa really doesn't work and that I am wasting my money on it. I have an appointment with my regular GI in a month and will discuss these issues with him. I was hoping I could get other chrons patients opinions on this before I go see my GI. I really am not in much pain and would hate to start a new drug if I do not need to. Thanks.
Mild Chrons Questions
- Thread starter Codder12
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Could your ab pain have been from the gallstone?
I would say if after 5 years you haven't got any scarring or increased inflammation, the Pentasa is doing it's job (which is to prevent inflammation coming back or getting worse). On it's own it doesn't usually heal inflammation. Just out of interest, what dose are you on? I was on 4000mg for a while, I was told this can be done if you have active inflammation and then reduce the dose once you are in remission. So if you're not already on the max you could look into that.
But I would also be reluctant to start a new med if your symptoms are fine and the CT shows your Crohn's is being controlled.
I would say if after 5 years you haven't got any scarring or increased inflammation, the Pentasa is doing it's job (which is to prevent inflammation coming back or getting worse). On it's own it doesn't usually heal inflammation. Just out of interest, what dose are you on? I was on 4000mg for a while, I was told this can be done if you have active inflammation and then reduce the dose once you are in remission. So if you're not already on the max you could look into that.
But I would also be reluctant to start a new med if your symptoms are fine and the CT shows your Crohn's is being controlled.
