- Joined
- Jan 30, 2012
- Messages
- 28
Peace to all as i usually begin my greetings.
Firstly, i'm so grateful for this forum when i found it and i'm also grateful for knowing about Crohns Disease (disease is such a strong word, maybe that should be changed) coz i never knew of it before,ever!!! So i've managed to expand my circle of knowledge through this period.
So my story- it all started about 6 weeks ago now. I was due on my monthly friend and so i was prepared for some sort of cramp, but this cramp was by far the worstttt feeling ever! An i mean that because, thank God, i don't tend to get cramps so much but this was on some other level. That was when i vomited followed by shivers and i literally couldn't stretch my legs out straight so i called mum to help me out. I had covered that pain as a menstrual cramp despite that i've never had that before.
Anyway, i then started getting more regular 'cramp' like pain around my lower abdomen. An it just started getting worse and worse by the hour. To the extent that i couldn't even physically walk. So i tolerated this pain, as i am good like that with physical pain, i have high tolerance. My cousin came over to stay for her holiday from America (poor thing i ruined her holiday :-(, and i was really worried about my pain thinking it could be my appendix. So we rushed to a&e and it was just a urine infection. Went back to my GP after my course of antibiotics was finished and so had my monthly. GP then felt my tummy again and said go back to a&e coz it could be appendicitis.
Bloods were clear, still some infection so more antibiotics. But the pain just kept on getting worse so i was in and out of a&e 6 times in the space of about 1-2weeks as i had other docs telling me to go back and have it checked with the fear of it being appendicitis.
Had CT Scan, Ultrasound thingy and they concluded it was just bowel gas/constipation which i had accepted thinking they know what's best. During that process of course my appetite was messed mainly due to the pain/frustration/stress. I then promised myself to cope with the pain for as much as i could but then 3 weeks and the same pain, i went to my GP. She looked at me in a verrryy unhelpful and rude manner saying 'you're just constipated, drink more water, eat more fruits'.
Constipation and right abdominal pain/tenderness for more than 3 weeks and this is all that they can do??? The stress and how unhelpful that was really killed me. So i took on her advice, and drank even MORE water (i'm constantly carrying water with me, i'm so aware of my hydration).
There came a point where i ate breakfast as normal and then needed to go loo, so i ran thinking don't delay and just go perhaps you'll feel better. But absolutely nothing!!! An this is a first in my entire life. I know my body, and i know when something isn't right and whether it's purely constipation or not.
So the day before yesterday i went to my walk-in clinic who referred me to a&e thinking again it was my appendix. The lovely doc saw me and she ruled out appendicitis and said it could be Crohn's but there's one more final examination i believe which is the laparoscopy thing i think.
Anyway the more i read on Crohn's the more it sounds right. Appart from the constant abdominal pain, i've been getting these mouth ulcers (now that i know what it is), dehydration despite hydrating myself, constipation, burning eyes, headaches, back/neck/leg aches, an lately i've been feeling like my mouth/throat are on fire which is something new, like i need Gaviscon or something cool.
Apologies for the length, but i feel soo much at ease mentally (physically pain is exactly the same, i've not even been able to clean my room that's how bad it's affected me) because now i have some idea as to what it is so i'm helping myself as much as possible.
That's my story for now. I'm due to make an appointment to see my GP to refer me for that examination this week. Otherwise, yeah mentally it's all good and that's what counts. This is the first time anything like this has ever happened to me in my entire life and this all started just towards the end of 2011 and me with my plans (as we all have) for 2012. But it all affected me, mostly due to the stress and lack of straight clarification from the docs. One doc said it was gastroenteritis, another a cyst all ruled out tho.
One's approach to a patient has more of an impact than the result/diagnosis itself. An we can adapt to any change as humans, so chin up!
Firstly, i'm so grateful for this forum when i found it and i'm also grateful for knowing about Crohns Disease (disease is such a strong word, maybe that should be changed) coz i never knew of it before,ever!!! So i've managed to expand my circle of knowledge through this period.
So my story- it all started about 6 weeks ago now. I was due on my monthly friend and so i was prepared for some sort of cramp, but this cramp was by far the worstttt feeling ever! An i mean that because, thank God, i don't tend to get cramps so much but this was on some other level. That was when i vomited followed by shivers and i literally couldn't stretch my legs out straight so i called mum to help me out. I had covered that pain as a menstrual cramp despite that i've never had that before.
Anyway, i then started getting more regular 'cramp' like pain around my lower abdomen. An it just started getting worse and worse by the hour. To the extent that i couldn't even physically walk. So i tolerated this pain, as i am good like that with physical pain, i have high tolerance. My cousin came over to stay for her holiday from America (poor thing i ruined her holiday :-(, and i was really worried about my pain thinking it could be my appendix. So we rushed to a&e and it was just a urine infection. Went back to my GP after my course of antibiotics was finished and so had my monthly. GP then felt my tummy again and said go back to a&e coz it could be appendicitis.
Bloods were clear, still some infection so more antibiotics. But the pain just kept on getting worse so i was in and out of a&e 6 times in the space of about 1-2weeks as i had other docs telling me to go back and have it checked with the fear of it being appendicitis.
Had CT Scan, Ultrasound thingy and they concluded it was just bowel gas/constipation which i had accepted thinking they know what's best. During that process of course my appetite was messed mainly due to the pain/frustration/stress. I then promised myself to cope with the pain for as much as i could but then 3 weeks and the same pain, i went to my GP. She looked at me in a verrryy unhelpful and rude manner saying 'you're just constipated, drink more water, eat more fruits'.
Constipation and right abdominal pain/tenderness for more than 3 weeks and this is all that they can do??? The stress and how unhelpful that was really killed me. So i took on her advice, and drank even MORE water (i'm constantly carrying water with me, i'm so aware of my hydration).
There came a point where i ate breakfast as normal and then needed to go loo, so i ran thinking don't delay and just go perhaps you'll feel better. But absolutely nothing!!! An this is a first in my entire life. I know my body, and i know when something isn't right and whether it's purely constipation or not.
So the day before yesterday i went to my walk-in clinic who referred me to a&e thinking again it was my appendix. The lovely doc saw me and she ruled out appendicitis and said it could be Crohn's but there's one more final examination i believe which is the laparoscopy thing i think.
Anyway the more i read on Crohn's the more it sounds right. Appart from the constant abdominal pain, i've been getting these mouth ulcers (now that i know what it is), dehydration despite hydrating myself, constipation, burning eyes, headaches, back/neck/leg aches, an lately i've been feeling like my mouth/throat are on fire which is something new, like i need Gaviscon or something cool.
Apologies for the length, but i feel soo much at ease mentally (physically pain is exactly the same, i've not even been able to clean my room that's how bad it's affected me) because now i have some idea as to what it is so i'm helping myself as much as possible.
That's my story for now. I'm due to make an appointment to see my GP to refer me for that examination this week. Otherwise, yeah mentally it's all good and that's what counts. This is the first time anything like this has ever happened to me in my entire life and this all started just towards the end of 2011 and me with my plans (as we all have) for 2012. But it all affected me, mostly due to the stress and lack of straight clarification from the docs. One doc said it was gastroenteritis, another a cyst all ruled out tho.
One's approach to a patient has more of an impact than the result/diagnosis itself. An we can adapt to any change as humans, so chin up!
