- Joined
- May 27, 2012
- Messages
- 10
Hello to everyone here. My name is Josh and I am 28 yrs young…. Lol. I was diagnosed originally with uc in 2007 where I ended up in the hospital for 2 weeks, but my symptoms started back in 06. I had constipation n had bloody stool. I did not pay attention to it at 1st thinking it would just go away n it did for about 2 months then it came back n this time it was worst. They had to carry me to the e.r because I could not walk due to the pain. The 1st week in the hospital I had nothing but diarrhea. Going total of 15 times to the bath. The 2nd week was a lil better. I was able to hold down food, not go so much to the bath, and was a bit more active. Oh, I forgot to mention that I was weighing 119 lbs and my regular weight was 150. Anyway, finally I was able to go home but was not out of the woods yet. For the next 2 months I still had somewhat of a flair up so I was watching myself. Finally I got out of it in May of 07. I felt good but not g reat. It would sometimes hurt when I would go to the bath. My meds consisted of asacol, azaithoirpine, and prednizone. After a couple of months of feeling ok i stopped taking the meds…… Big mistake! I rel-lapsed in May of 08 n this time it was just as bad. The good thing is I didn’t go to the hospital, but the pain was just as bad. I was bad for 2 months again and wanted it to end already.
My g.I doctor recommended me to a specialist in cedar. I went to the specialist and he put me on remicade in 09. My symptoms where improving a bit. I would get my infusions every 8 weeks, but after a while my symptoms would return like in the 6th week or so. After a yr and half of remicade(along with all my other meds) he decided to try humira Wich seemed to do the trick if i got the shot in time. The only thing is that its. Painful shot and its done every 2 weeks so that was not fun. In November of 2010 I had a colonoscopy and he determined that I had more chrons than uc. So he d iagnosed me with chrons/colitis. My illness is mostly concentrated about 30 centimeters In to the rectum. The rest of my g.I system looks to healed. Now I’m back on remicade again and i had a minor surgery to have a ceton put in due to a fistula. The pain in the rectum I feel has gotten worse. I have been on pain killers non stop for almost 5 months now. The remicade does help to a certain point but After that i don’t know what to do. I refuse to have surgery cuz I know that somehow God will heal me. I feel that if i give the rectum time to relax it will start healing, but its hard cuz if i don’t eat my stomach hurts and if i eat i gotta poop and that’s where the pain starts. Luckily I have not had a major flair up since 08, but i do have constant little ones. My problem seems to be the rectum. If i could somehow get that under control I know that i would be in a better shape. Well that’s my chrons story my friends. If there is any advice I would sure love to hear it. Thank you for reading. :sign0085:
My g.I doctor recommended me to a specialist in cedar. I went to the specialist and he put me on remicade in 09. My symptoms where improving a bit. I would get my infusions every 8 weeks, but after a while my symptoms would return like in the 6th week or so. After a yr and half of remicade(along with all my other meds) he decided to try humira Wich seemed to do the trick if i got the shot in time. The only thing is that its. Painful shot and its done every 2 weeks so that was not fun. In November of 2010 I had a colonoscopy and he determined that I had more chrons than uc. So he d iagnosed me with chrons/colitis. My illness is mostly concentrated about 30 centimeters In to the rectum. The rest of my g.I system looks to healed. Now I’m back on remicade again and i had a minor surgery to have a ceton put in due to a fistula. The pain in the rectum I feel has gotten worse. I have been on pain killers non stop for almost 5 months now. The remicade does help to a certain point but After that i don’t know what to do. I refuse to have surgery cuz I know that somehow God will heal me. I feel that if i give the rectum time to relax it will start healing, but its hard cuz if i don’t eat my stomach hurts and if i eat i gotta poop and that’s where the pain starts. Luckily I have not had a major flair up since 08, but i do have constant little ones. My problem seems to be the rectum. If i could somehow get that under control I know that i would be in a better shape. Well that’s my chrons story my friends. If there is any advice I would sure love to hear it. Thank you for reading. :sign0085:
I am sorry to hear about the ongoing discomfort you are feeling, if you have not already please do check out our fistula/abscesses sub forum as there may be some helpful info here for you about what may help with pain: 
