My Story

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Joined
Jul 25, 2011
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I see that the first post here is supposed to be in the Your Story forum so here I am.

I am about to turn 24 years old and am recently diagnosed with Crohn's and RA. I have dealt with GI issues my entire life and while suspicions were there, no doctor would "take the leap" and call it what it is. It started in 2010 when I went into the ER with severe abdominal pain, fever etc... and they "determined" that I needed an appendectomy. I went through the surgery and for a brief period afterwards felt OK. Soon after though I developed a bowel obstruction and was hospitalized again. That resolved I went home only to be back in the hospital 3 weeks later with a second bowel obstruction. The doctors there told me to eat more fiber to help move through this system. I tried explaining to them that if I eat fiber I would only be right back here with a third obstruction. So I disregarded their recommendations and tried to come up with a diet on my own. A few months later I was still in the same pain with the vomiting and diarrhea getting worse. My GI decided that my gall bladder needed to come out - and while that has solved a lot of the vomiting issue, I have been bleeding mildly for about a month now. I was put on Entocort along with protonix. Because of all of this I have had to stop going to school and not been able to work consistently. I'm still in the very early stages of figuring out how to handle this and what medications to be put on. So this is my story. It's only the beginning.
 
Hi Morgan and welcome! I am still trying to figure this Crohn's thing out myself. It is certainly an adjustment.

So, did you in fact really need your appendix and gall bladder removed? Had your doctors done any GI testing before they came to this conclusion?

I hope the Entocort has been helping and you are slowly feeling better. Hang in there!
 
Hey Morgan,
I just wanted to say I can totally relate to your story. I've been dealing with this for awhile and still haven't figured it out. I know, it sucks but don't let it define who you are. Goodluck!
 
I,

30years experience with Cronh's here...

Here's what to do:

1. Insist on being tested for Crohn's or UC. Doesn't work? GHANGE GI! There's nothing that can be done UNTIL you know.I can't believe they didn't test you yet (scan and small instestine radio + blood tests)

2. Classic treatment: (folowing a flare-up): prednisone.

3. Then: probably Imuran (anzathioprine) mixed with prednisone, then Imuran alone and see if it works.

Meanwhile, stay away from fibers and spicy meals. Maybe milk and cheese too (depends). Never ever eat corn, celery, or any kind of nuts and whole cereals!

For more info, you can email me.

Pierre, Canad
 
Hi morgan, i've had crohn's for 21 years now and i really tried fibre a first but only soluble fibre, stay away for whole wheat, corn, oats, sodas, etc. they are the worst. try to stick to fruit and veggies, v8 juices and water. it's going to be hard at first but, you will finally get a handle on once your on the right meds. i'm not saying it's not going to easy but at least there is a diagnose for what you have now you can work with your doctor to get you on the right track also, check with a dietician to see what you can really eat. if you need anybody to talk to my email: is [email protected]
 

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