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El_Guapo1976

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I am a 31 year old half spanish half italian living in London.

I was diagnosed with Crohns at the age of 8. Throught my childhood I had endless colonoscopies, endoscopies, enemas and was put on a very high dose of steriods. To say I never really experienced a proper childhood is an understatement. I was in constant pain but learnt to grit my teeth whenever I felt a cramp as I just wanted to be normal like everyone else.

The steriods obviously stunted my growth a little. I often feel I am but a shadow of the man I should have been were it not for this disease.

At 17 I had my first minor operation to remove an abscess. I was stupid in that when I first saw it I tried to ignore it hoping it would sort itself out. Eventaully it got to the size of a golfball before I did something about it. I remember sitting in my 6th form history class and suddenly feeling a warm sensation down below. Fearing the worst I rushed to the toilet, only to find not what I was expecting, but rather the abscess had split and was bleeding. I was saturated in blood.

At 18 I had my first major operation to remove part of my colon and was fitted with the bag. It had got to the point where if they hadn't operated I would have died. The Doctors said at the time it was for the best but looking back Im not so sure. All I know is that the years that I should have been out enjoying myself were stolen as a result of the damn bag. I could never do the pubs and clubs with my friends as I was always petrified of needing the toilet. Funny thing is, as I'm sure you'll all agree, that just thinking about the toilet is often enough for the belly to begin gurgling. And as for meeting girls? Forget that. Who wants to date an 18 year old guy with a colostomy bag?

After about a year the Doctors decided to reverse the bag. Well, I say the Doctors decided, the truth is I more or less demanded it. I decided I would rather live a short life of exquisite pain than a long life of misery on my own.

And here I find myself at 31 years of age. I currently work as a conveyancer (no fun in the current housing crisis!) in West London. I haven't been to the Hopsital in nearly 3 years, electing instead to just try and get on with it. I think I probably now have a fear of hospitals in general. I have a LOT of bad days and sink into long periods of depression. Like others on here, Im sure, I have often contemplated ending it all.

I thought I'd join the forum to speak to people with similar experiences, and maybe make a few friends along the way.
 
Welcome El Guapo. You will find lots of good supportive folks here who really understand what you're going through. Glad to have you aboard.
 
Thankyou for the messages of support. For a long time I found it really hard to talk about my condition to people, almost like I should be ashamed of it. Its only recently that I've come to the conclusion in my head that, if anything, I am stronger than a lot of people for going through what I've been through.

You guys seem a nice bunch, and I'm glad I've joined.
 
LOL. I dunno...might be a good way to throw the other players off their game! :)

Family and friends hard to talk to? You said it!

My family don't understand what this disease does to your head. Nobody can unless they have been through it can they? I hardly ever talk about it to anyone, preferring instead to bottle up the emotions inside. I know this is the wrong thing to do, but when I try to talk to someone its a case of "where do I start?" and I end up feeling as though I sound like I'm feeling sorry for myself.

I tend to smoke a lot of Hash. This seems to help with the pain. (and I'd be lying if I said I don't also take some pleasure from it! lol)

Someone also suggested taking anabolic steriods and weight training to try and bulk up. Maybe by looking good I will start to feel good about myself?

The only thing that worries me is that I don't know what effect anabolic steriods could have in relation to the Crohns. I tried speaking to a Doctor and got the usual crap.

I'd be interested to know if anyone else has thought/tried this to try and put some weight on?
 
Thankyou for the tip. I'll keep an eye out for that name. If you happen to speak to him, may I ask that you let him know a newbie on here would like to have friendly chat?

Have to log off for a bit. Work calls...

Many thanks again to both yourself and Drew for taking the trouble to reply to my posts. It is greatly appreciated and I look forward to speaking with you on a regular basis.

Hope you have a wonderful day..x
 
Welcome to the forum!

Take your time browsing the topics. read, and any questions
just ask away.
Someone is always around to help out.

Again, Welcome!! :)
Heart hugs~Nancy
 
Hi Steve and Nancy.

Thanks to you both for the warm welcome...:)

Just getting my bearings on the site at the minute..I'm sure you'll be seeing lots of comments from me in the future.

Will put a photo up in the next few days so you all know who it is you're talking to!
 
Pen - did you mean that Benson knows a lot about the weight training, or about the hash??
:tongue:

El Guapo, welcome!
 
Agent X20 said:
I've already got a mental picture of El Guapo from "the Three Amigos" (was that the name of the film?)

i do not think you know what a plethora means... I love that film:D

welcome El Guapo!
 
LOL

Hello to everyone.

Yup, you guessed it. I did borrow my name from the 3 Amigos :)

thanks again for the warm welcome people. Much appreciated..
 
Welcome!

Good to see you found us. I did laugh when the 3 Amigos were mentioned.

It makes such a difference being able to talk to others who totally understand. Also helps you to formulate your own thoughts and feelings better and work through things you have perhaps avoided too.

Keep posting. Looking forward to seeing you around!
 
Hi El....May I call you El?

I too have had things pop in the rear. Its a very diminishing feeling. Especially where the ladies were concerned.

I have never had a bag so I can speak to that. I can only lend a hand.

Surround yourself with good thoughts. You didnt miss anything from the "Bar scene". All those people all had their issues.

Depression sux.

Good luck New here too.

Vinny
 
Welcome El Guapo.

I am a recently-joined member here too. I'm finding lots of commiseration and help on this forum.
 
Hi everyone..

Thanks for the wamr welcome once again.

@The One...Of course you can call me El..:)

Had a bit of a bad day today. Can't stop feeling so lethargic..

Does anyone else find their energy levels go up with the level of sunshine? I always tend to ache more on a gloomy day.
 
Hi El Guapo, I just wanted to say, if that's you in your avatar, you are an attractive guy, and if exercise makes you feel better, that's great, but I think the girls in London must be silly if they don't think you look great already.

Your story made me sad though. First, I'm sorry anyone should go through what you have, and second, I have a son who is having some growth issues due to medication. :(
 
Aw..Shucks! Thankyou x :)

Sorry to hear about your son. I won't lie to you, it can be hard. I'm not too bad to be honest, (I'm 5'6 on a good day) but height is an issue in todays society. However, provided he's stays healthy, it shouldn't hold him back too much. xx

TBH I am a bit insecure. The Crohn's has really messed with my head. For years I was too embarrased to even take my top off because of the scars. People have always commented on my eyes, but when you don't feel good about yourself it doesn't matter how many compliments you get, you still feel shitty. I'd be lying if my biggest fear isn't growing old alone but part of me thinks that no sane woman would want the stress of having a husband with Crohn's. And that tends to hold me back a little..I have nightmares about waking uo next to somebody only to find my butt has been leaking in the night...

Why is Crohn's such a socially rotten disease?! :ymad:

I'm slowly starting to get over this I think. I have good days and bad days. Today started pretty bad but ended pretty good.
 
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I can totally relate to being insecure. I'm lucky in that I was married already for awhile when my symptoms first really kicked in, and they were initially mostly extra-intestinal. Starting two years ago, my husband has an illness that cause lesions on his spinal cord and made him go numb from the waist down. He also got vertigo so badly that I had to physically dress him and take him to the ER and/or call an ambulance. I also had a lot of barf to clean up. He does extra for me when I hurt so bad I can't walk up and down the stairs, or when I'm so exhausted I can't hardly move.

The way I see it, taking care of someone you love isn't a burden, it's a blessing. You just need to have faith that the right person is out there. (and I know that's not easy, I don't mean to belittle your concerns at all)

Also, if Chang and Eng (the "original" Siamese twins) were both married, there really can be "someone for everyone!"

I hope that at least makes you chuckle a little. :)
 
That is an excellent question, and one I have often pondered. But the answer I invariably come up with is "yes" followed by another question, based upon the assumption that I am a nice guy..

"Is everyone as kind hearted as I am?"

It scares me when I consider the answer may be a No..
 
I guess you're right. Funny thing is, I do get a lot of looks from women when I go out all scrubbed up. Its just a confidence thing for me..

Anyway, its late here in the UK so hope you have a nice eve..(or is that afternoon where you are? :) )

I'm off to bed..x
 

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