My Story

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Joined
Feb 6, 2013
Messages
16
Location
San Diego
Hello all,

First off I want to say that I am unsure of whether I have IBD or not. My issues started in November when I got, what I thought was (or might have been), the dreaded stomach flu. It lasted only a day, and at the end of the day I was eating yogurt and soup with no problem. The next day I woke up feeling great, but my stomach was really shaky for a few weeks. It didn't help that that weekend I had signed up to go to the Food and Wine Festival with my boyfriend. Well, the alcohol and plethora of food = tummy issues. An OTC dose of prevacid cleared it up. At the same time my flu started, I also stopped six months of taking the antibiotic keflex for acne. I started to think that maybe I was sick because my gut flora had been wiped out.

I have had stomach issues most of my life, generally stress related. I have generalized anxiety disorder, and can have wicked panic attacks when I am not monitoring my stress. I can be in remission of either of these symptoms for years, and then it can rear its ugly head one day. For the past three years I have been dealing with more stress. Probably because I am out in the working world, out of my safety-net of school, and now I am doing sales. (See a pattern? I know, I'm working on it).

Anyway... In the past I have been treated for GERD and mild IBS from periods of stress. In November I had a week or so of blah, but then I was fine, for almost a month. Then around Christmas I remember something unusual. I was eating dinner with my family, and felt fine, if not a little too full. Then around dessert, (it was also my birthday), I had some cinnamon tea and a big slice of cake with ice cream. That night I was in discomfort, I had trouble sleeping. I swore it was just acid reflux, I probably over did it... AGAIN. I took Mylanta and hoped it would go away. But it didn't, not really... I spent over week on the bland non-gluten diet, as recommended with my friend who has been in UC remission for years. It seemed to help, I slowly got better.

Finally, it was the middle of January and I got to go on vacation. My boyfriend and I were careful with what I ate. However, since I had been feeling better I ventured out slowly to try new foods to test the intolerance theory. My first day, pineapple and eggs. I felt like I had won the lotto, how awesome that I could eat that? The following day, a chicken sandwich with regular bread, SCORE! The third day, pot roast with mash potatoes, green beans, and a diet coke, NORMALCY! My stools had been generally softer before this point, never watery. Finally they were getting back to normal, they were still soft-ish but not as bad.

And then... I got THE head cold. Yes, the head cold of doom in the middle of my vacation at Disney World. I probably picked it up from a little kid, always figures... So my main staple was tea, tea, tea, AND more tea. Followed by anything bready to soak up my stomach issues, thanks to post-nasal drip and decongestants which already tweak out an anxiety-prone person. So I thought, well, my tummy probably reverted cause I am sick. It happens.

I come back to work, and the first day back I have a tuna salad sandwich, hard boiled egg, and this amazing hibiscus tea. I still have to stay away from carbonation, but I could live with this diet. I had zero issues and felt normal, besides a bit of sniffles. That night my mom and I went out to dinner, where I had a grilled tilapia taco with a bit of this spicy sauce on it. DANGER WILL ROBINSON, WE HAVE A PROBLEM. I hugged the toilet and was belching and started having a panic attack praying for it to end. It did, but my nerves have been on fire since then which has not helped my stomach recovery at all. To be fair, my mother also got a bit sick the next morning. She had eaten something different, but suspected we might have picked up a bug. To make it worse, my friend says she is a sensitive and told me flatly, "you are going to have a colonoscopy, and they are going to find crohn's". Bad idea, you never tell a borderline hypochondriac that. She knows most of my symptoms and tells me it is Crohn's. The naive part of me wants to believe her, the other part of me says... "No, no, no, wait for the doctor."

I have seen my GP twice. The first time they suspected gallbladder issues, but my blood work came back normal. My cholesterol was a bit high, that was about it. They also tested me for h. pylori. All negatory, all clear, clean bill of health.

Well a few weeks later I still had problems. So this last Friday I went back to my GP. I was fine until I finally broke down due to general stress, and the stress of not knowing why I was feeling so crummy. Mild fatigue, loose stools (not watery), lack of appetite, mild abdominal pain ranging from my lower left quadrant, up to my breast bone, up to my lower right quadrant. It never hits all at once. If I eat something bad it feels like slight burning feeling, but usually it's just a pressure feeling, like gas. They felt my gallbladder, liver, thyroid, and did an external examination of my stomach. They also ordered a stool culture for ova parasites, c. diff, etc. I don't have the results yet, I hope I do soon.

Next week I go to a GI. I guess I will feel a bit ridiculous if this turns out to be stress related, however, the initial onset was during a period when I was not stressed at all. I feel like nerves are definitely worsening my tummy, and when I get anxious I typically get GERD, looser stools, and lack of appetite. I've dropped a few pounds unintentially, which sort of scares me.

Symptoms:
*Gas and bloating, usually mild
*Cramping pain around my lower abdomen at times
*Burnining sensations around lower left abdomen when I eat something bad
*Loose stools, typically regular or greenish in color. Only one instance of watery like stool after eating some Bevita crackers. (I later ate popcorn without issue, go figure??)
*Spicy foods and carbonation are a death sentence - aka, sensitivity
*Weight loss - stress related or otherwise?
*Anxiety and depression - anxiety is in full gear, thank you GAD.
*Stools are typically thinner
*Loss of appetite, tends to improve when I am less stressed

Current DX, may be non-related:
*Generalized anxiety disorder, prone to panic attacks
*GERD
*hemmorhoids, and one anal fissure - had a few episodes of OMG WTF, but the doctor did an examination and told me it was the above. I have not had any bleeding since. Although the first time there was a lot. They have given me suppositories since and I have not had a reoccurence.

So I guess this is a place for me to somewhat vent, but also have support and feedback from those who have had odd symptoms as well. I really hope I do not have IBD. If I already have GAD and periods of panic, I feel that my quality of life would be very tough at times. Is IBD managable? What are your thoughts.

Yes, I know I need to take a chill pill. Unfortunately, I'm wired at super sonic speed.
 
I can't say what it is for sure, but I will say that my situation sounded like yours, and I had initially thought a lot of it was stress related. You know what though? Don't beat yourself up over it if it's stress related! People are different, and stress-related intestinal discomfort is not imaginary. Wait to see what your GI says regarding a diagnosis.

IBD is manageable. I say this as someone who freaked out and went into a total tailspin after my diagnosis -- anxiety, depression, you name it. Now that I've had officially had this disease for over a year, I realize that there will be ups and downs, but I managed to figure things out, get some appropriate treatments dialed in, and I am still living my life and doing A-OK. Some people take more time than others to figure out what works, but once you get things figured out, IBD can be successfully managed. Try not to freak out just yet. Please keep us posted on how you're doing, and feel free to keep asking questions -- this board is a pretty great resource!

P.S. Again, speaking from experience: Easier said than done, but try not to scare yourself with lots of what people write online. People tend to vent (myself included) and ask lots of questions online when they are feeling sick, but there aren't too many people who post daily announcements on how great they're doing when things are good! Keep that in mind -- you can sometimes get a skewed view of things if everything you read is all gloom and doom. You're gonna be OK. :)
 
Hi shelikescats! Thankyou for sharing your story with us.

first of all i do agree with JDTM.. try not to read too much into what people write when it comes to venting. because people generally write things online when things are bad.. in saying that though.. feel free to vent anytime! Haha we all need to do this at some point ;)

You are going down the right track by seeing a GI. do not doubt your symptoms! I have suffered anxiety and depression a few times... and its easy to doubt yourself. the best thing to do is get it checked out. dont worry about having a colonoscopy.. theyre not as bad as they seem.

That burning sensation you have in the LLQ could be due to inflammation.. i get the same in my LRQ (and scope found inflammation in that exact area)

I also find that when my tummy issues are bad.. most foods can set me off. bit when my tummy is settled - i can eat almost anything.

please keep us updated :) xx
 
Thanks for the replies all. JDTM, you gave me a bit of hope. At least if it is IBD, it may not be the end of the world. I think at this point I may be psyching myself out which is not helping me in any regard with my stomach. I've been through versions of this before. The first time was when I went away to college. Night time panic attacks, refused to eat for a month, dropped about 15lbs. It finally went away when the panic did. But a lot of those symptoms I had, are rather similar to what I have now. The difference is that the onset was not initially caused by stress. I really believe that after the antibiotics and that stomach bug, something happened. I know my tummy pretty well, and it's been rather odd since then. Part of me hopes it is bacterial or IBS, I know that bacterial has a new somewhat disgusting near cure on the market... But with IBD, I think it scares me because it seems so variable. Some people have super mild cases, maybe one or two flares in their life. Others seem so miserable, and so unable to enjoy their lives. One of my major loves in life is food. I'm overweight, but been gradually going down to a healthy BMI (on purpose). I would hate to have a disease that takes away a lot of that love. I do get love elsewhere, don't get me wrong, but I love a good glass of wine. I also have an addiction to Mexican food, and coffee. I've had to give up coffee and soda sporadically due to GERD. Permanent removal, while sucky, just seems a bit depressing. I guess I just want answers. I'm not a very patient person. And my friend, while trying to help, has made me an absolute wreck. I've dropped about six pounds in two weeks already from my restricted bland diet, and the stress of her statement does not help. In fact, it makes me want to revert to not eating, etc. I really feel that if I can heal my mind, that the rest will follow. Unfortunately, my mind is very stubborn...

How are colonoscopies and endoscopies by the way? My family says the prep is the worst, the rest you are pretty much out cold. I think as long as I let them know I get bad anxiety, they will monitor my dosage of whatever they are giving me.
 
Again, this sounds WAAAAAY too familiar. I freaked out about not being able to eat all sorts of stuff when I was first diagnosed, and yeah, my diet was pretty limited for a bit. However, I am in a fortunate position where I can eat a fairly unrestricted diet -- and yes, that includes coffee, beer, and Mexican food (although not ALL the time). That said, even when I was sick, I learned to enjoy certain things, and as I started to feel physically better, I was happy to be able to go out and enjoy food even if it was slightly blander or more limited that I would have liked.

Colonoscopy prep sucks -- it kinda tastes not-so-great, and using the bathroom a lot is kind of a drag. However, once you're actually there, you should be pretty much out of it for the whole thing and it's not a big deal for most. I was completely zonked. My only advice is to bring someone with you for the end when they talk to you -- you might still be a bit groggy and you might not remember everything that is said to you.

Mind stuff can play into this as well, and I feel that as I have learned to cope with anxiety issues through medication (avoided successfully until shortly after diagnosis, thanks Crohn's!) and therapy, I've started to feel a lot better mentally, and my body seems to have followed suit. You'll get there buddy, I promise! :)
 
i tried to reply earlier on today - but my mobile phone network crashed! grrrr!

try not to worry about colonoscopies (easier said than done) the prep is definitely the worst part. I have had 3 scopes and all done with just gas and air and no sedation.
Im the biggest wimp ever... and if i could do it, im sure you can ;)
they dont last too long and they know what they're doing.

is there any history of IBD or bowel problems in your family at all?
 
Zero. Nothing autoimmune that was serious either, and the few cases that did happen were short lived. Uncle had a skin issue, like a sunburn all over his body. That lasted a month, no reoccurrence since. I had a reaction to an antidepressant that put me in severe bouts of pain, they took me off of it and zero problems since. My aunt has MS, a real fluke in my family. My dad died of a very very rare cancer. It begins in the endocrine ststem but they found it in his colon when it was too late. I was told this is not genetic by the doctor. I am usually healthy, my mental health is my greatest struggle. Physically I have gerd during periods of stress, and sensitivities to caffeine. I need to loose a bit of pudge and manage my cholesterol a bit. Both sides of the family have a bit of depression. Other than that, my family is great. I have a very very large family, no genetic disorders or heritable anything known. People typically live at least till their eighties. I am the fluke with anxiety. So if I do have IBD, I have to question whether it was due to infection, or something like it. Oh and hemorrhoids runs on my moms side, thats it. Very healthy people in general.
 
Getting a few tests run and have a colonoscopy and endoscopy scheduled. They do not suspect Crohn's, but I elected to have the above tests to rule everything out. So far it seems to be a mix of IBS and a gluten and dairy sensitivity (possible Celiac Disease).
 
Just feel like venting a bit. I don't know what it is, food allergy, IBD, IBS, etc., but it would be nice to have a treatment plan. So far I've only been given more xanax and a higher dosage of zoloft. I tried a month of omeprazole too, it did nothing. So frustrating. Eating right seems to help. Although, I feel like my stomach is so inflammed that I can't have any irritants especially coffee and caffeine. They did test me for H. Pylori using a breath test, is that even accurate?

The worst part is hearing, "your results are normal." I still have to wait two weeks for my colonoscopy and endoscopy. If they can't find anything with those, they might have me do a pill cam. To make it worse work is making it harder for me to take off and care for myself. I now have to choose between going to my Dad's memorial service, or saving the time for more appointments. I have no more time to take off. My therapist thinks I should go out on disability, or quit. I don't know what to think anymore, because I need my insurance. I was already battling a growing problem of depression and anxiety before the stomach problem hit. My New Year's resolution was to get healthy. I feel like everything combined is affecting me, my job, my family, and the person I care about most.
 
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Things have slowly gotten better. I have been gluten free for 3 weeks and feeling better! Last week I even traveled for work, and I had zero symptoms. I also made some sales too :)! The bad news, is that this week has been a bit harder dor the tum. I am wondering if I got too confident with food and effed up. I had some non-lactose dairy products, salsa, gluten free pasta with spaghetti sauce, and coffee. Woke up this morning with a lot of gas pain which somewhat went away. I thought it was due to constipation so I tried coffee. So now my intestines and tum hate me. From the blood and stool tests there were only two findings. Blood test showed slightly elevated crp, and wbc. GI doc says she cant interpret those results yet. They are not highly elevated and can point to everything from stress, inflammation, virus, etc. Monday is my colonoscopy and endoscopy. I get to try the new prepopik prep. I am hopeful that answers will come soon, and my symptoms are more manageable.
 
Clonoscopy and endoscopy were a breeze. The prepopik prep tastes like capri sun and orange juice mixed together. In total I only drank 10 oz, the rest is followed with water. Vaseline made the prep easy, and the prep was a bit uncomfortable but manageable. My colonoscopy came back clean visually. They took biopsies along the way to check. On the endoscopy they found mild inflammation in one portion of my stomach, this is being biopsied as are the normal regions. So far, IBD dx is unlikely accordint to the doc. I may do a pill cam and small bowel series to be safe.

The procedure was so easy, I couldnt believe it. I woke up feeling like million bucks.
 
So happy it went smoothly for you. Thanks for sharing the results. MAke sure to get copies of the biopsy reports ... sometimes microscopic inflammation is found that is not visualized. good luck!
 
Went to follow up on the biopsies taken. All biopsies came back negative in colonoscopy and endoscopy. The mild gastritis found on endoscopy was due to either reflux or diet based on the analysis, not even h. pylori. I have been doing much better since my original post, so much so that doctor is fine keeping me on Omeprazole and Bentyl for treatment now. I don't have a diagnosis, and I don't know what caused this all to start. I DO know that I can feel OK if I stick to good foods and keep my mood stable. I will be doing small bowel series in the next few months to be on the safe side, but otherwise the doctor says there is no colitis, crohn's, celiac, etc. that she can see from all of our current tests.

So I am happy that I don't have an IBD dx... but also unhappy that I don't have a dx at all. My doctors haven't said anything, but I get the inclination that I will most likely get the IBS diagnosis. Which is OK I guess. I had it when I was a child and it went away as the stress in my life did. I've decided to just take it one day at a time, and be happy about each day I do feel OK.
 
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