Hi all! I am a 31 yr old female with a 5 yr old daughter and loving husband. I started having unusual symptoms on July 3, 2010. The very first symptom was a small area of redness around the corner of my lips and what looked to be like a fever blister. I woke up with swelling arounds the lips the next morning. I had never had fever blisters but went to a clinic for a diagnosis and medication. The doctor at the clinic did not take much of a look at me before diagnosing me with a fever blister and giving the medication he thought I needed. The next day I started to get a blister on the inside of my cheek. This blister continued to grow. After seeing another MD and another misdiagnosis I was sent to a dermatologist. The Dermatologist initially thought it might be Shingles. He stated it would continue to be painful for a while but would go away and I would have anymore problems with it. He was again wrong! I continued to have ulcers in my mouth about every couple of months or so. I was put on Dapsone for the ulcers.
The dermatologist did biopsies a total of three times and never got any other useful information from them. I worked with someone that has crohns and she suggested that I get screened for it. So I proceeded and had a colonoscopy that revealed a normal colon. I have not had any diarrhea or bloody stools. I am asking you guys to just give me some advice. I have since moved and have had to start all over with new doctors. I am wondering if I need to push the possibility of having crohns. I have recently seen a rheumatologist and he is not sure of what I have either. So, again my symptoms are intense lower back pain then redness around the lower lip with tingling and swelling about a day or so before the blisters show up. Then the blisters show up all over the mouth and are painful and take a good week or two to go away. I did have some abdominal pain but that cannot be ruled out as female related pain. I feel like my intestines quiver sometimes. In fact that happened so much at the beginning of all this that I took a pregnancy test thinking it was fetal movement. I have not had a mouth full of blisters in a while but I have continued to have mild blisters. Do these symptoms sound like crohns symptoms. Do the flare ups have a degree of really bad sometimes and not too bad other times. Please give me your thoughts.
The dermatologist did biopsies a total of three times and never got any other useful information from them. I worked with someone that has crohns and she suggested that I get screened for it. So I proceeded and had a colonoscopy that revealed a normal colon. I have not had any diarrhea or bloody stools. I am asking you guys to just give me some advice. I have since moved and have had to start all over with new doctors. I am wondering if I need to push the possibility of having crohns. I have recently seen a rheumatologist and he is not sure of what I have either. So, again my symptoms are intense lower back pain then redness around the lower lip with tingling and swelling about a day or so before the blisters show up. Then the blisters show up all over the mouth and are painful and take a good week or two to go away. I did have some abdominal pain but that cannot be ruled out as female related pain. I feel like my intestines quiver sometimes. In fact that happened so much at the beginning of all this that I took a pregnancy test thinking it was fetal movement. I have not had a mouth full of blisters in a while but I have continued to have mild blisters. Do these symptoms sound like crohns symptoms. Do the flare ups have a degree of really bad sometimes and not too bad other times. Please give me your thoughts.
