New meds and a strange doctor's visit

[DanM]

My doc asked me to meet with her surgeon to discuss my muppetoscopy and MRI results. Surgery may be in my near future, so wanted me to know all of the options and details. This has to be the strangest doctor's visits ever. He walked in, sized me up, saw how healthy I looked, and after 2 minutes of talking decided that I am not surgical. We really did not get into any of the details. Despite the inflammation and fistulas in the ilium, I am in no pain, no weight loss, or any other symptoms of Crohn's! I guess I am a freak of nature and a medical mystery.
:eek2:
My doc now has me on 60mg of 6MP and will be starting Humira in a month. In six months we will repeat the tests to see how things have improved. She is afraid that after the fistulas have closed and drugs have done their thing, the ilium will stricture and require surgery. This way they will resect less and have a cleaner anatomy than if they do it now. I'm not going to get all worked up about the possibility of surgery until I know it will definitely happen.

Fun Fun!

Dan

 

[D Bergy]

I hope you do not need the surgery, but if you ever do, it does make you feels better than a nearly closed stricture does.

My doctor was perplexed at my lack of pain also. I just said "No brain no pain".

I have never heard of a Muppetoscopy. I keep picturing Ernie or Bert on the end of the scope. I hope that is not how it actually went.

Other Dan

 

[ThatGuy2006]

Well, I will tell you that from my experience, humira has been pretty good to me. I'm on weekly injections and it seems to be getting everything under control for the most part. I hope that you do not have to have surgery, but, I will say I am glad I had mine...even though my inflammation came back like 2 months later...I am still (by comparison to last year) much better off. I wish you the best and hope you can avoid the surgery and still feel well for as long as possible

Not Dan lol

 

[mRae85]

I am the complete opposite of you. Pain is my main symptom or at least the one I tend to notice the most. Mind you I have a very high pain tolerance so when I say it hurts.... to most people they would be in the ER screaming bloody murder... as of now I am at 38 hours - no sleep.... it doesn't hurt it just doesn't feel good at the moment, in my book it is at a 5 and a half for now, just enough to keep the blood moving too fast for sleep I guess. I really want to try some other option, but I dont see much changing in my near future yet. Everyone here that is on these other treatments seem to be getting such great results, I'm going to ask my Dr on Monday about all of this, I haven't talked to this Dr yet about all the other meds out there outside of pill form.

 

[DanM]

I have never heard of a Muppetoscopy. I keep picturing Ernie or Bert on the end of the scope. I hope that is not how it actually went.

Other Dan

Yes... muppetoscopy. Bert and Ernie are not at the other end... Just think for a moment about how Kermit is manipulated by his puppeteers. Get it?? :eek2:

mRae85, Plenty of good and happy thoughts going your way. I hope you find you way to a restful night sleep. I remember back 12 years ago when I was first diagnosed I had the opposite problem. I was probably sleeping close to 12 hours a day. If I wasn't in class, I was most likely in bed reading, studying, or sleeping.

Here is to hoping for 13+ years more of remission!

Dan