New member - need to chat with people that understand

[srowe]

new member - need to chat with people that understand

Hi Everyone!
Ok I'm new, I'm almost 20 and I've had crohn's since I was 16. I guess I just wanted to talk or rant or just share advice with people that understand what CD is. I've always thought the chat rooms/forums weren't for me but I can't take it anymore, crohns is ruining my life. It is the main stress I deal with and all my bad luck lately seems to stem off of CD problems. My husband is very understanding, thank god but I still dont feel like he really gets the whole picture.
I guess another reason I'm on here is to see if anyone is dealing with some of the same things like trouble with work or school because of CD or not having very good health coverage. My health coverage (medical/CCS) pulled me through a ring of BS and took me off my meds for 9 month, i'm doing better but lately I feel horrible and I'm feeling so very frustrated because nothing I do is helping the symptoms. And to think before all of this I was almost fully symptom free =/ I can't even get a blood test, I haven't had one in almost 2 years, i hear thats a no no lol
I know a lot about the way my body reacts to medications. Changing my diet hasn't helped at all really, I guess it's just like that for some....if symptoms weren't so random i think I would be dealing with this a lot better. haha
I'm currently on remicade, 6-mp, and prilosec but i've taken a few others, I've flat out refused to ever take prednisone again though lol
This feeling of weakness and giving up is new to me and I hate it so much. :depressed:

Well I guess thats it, I don't really know what to say...so I guess I'm done

sorry for such a long post =)

 

[Kev]

Hey srowe, welcome to the forum. Have we got just the right website for you! The rollercoaster ride this damned disease is can be pretty hairy at times. we've all been there, we can appreciate and understand what you're going through. The good news is that just like there are bad days and bad times, good ones are sure to follow. Take our collective word on that, OK? In the meantime, rant, vent, just bitch if you want to. you're sure to find a sympathetic ear on this site. Or, just an opportunity to chat to someone who knows what its like. Anyway, once again welcome. you've paid your dues same as the rest of us, so you might as well enjoy the privileges of membership to this forum.

 

[Stuffette]

Srowe, welcome to the forum. You are in the right place to vent, ask questions, or just browse.

 

[srowe]

thanks for the welcome =)

and while i'm at it happy thanksgiving!

 

[Nancy Lee]

Hello and welcome to the forum!

Please feel free to browse the forums for symptoms and medication information.
Also if you just want to vent or a shoulder to cry on....we're here for you.

Throw the questions out there and we'll try to answer.

Welcoming hugs~Nancy

 

[Jvstin]

I agree, this is a great place to feel accepted. I was part of a myspace crohns group, but it was weird and stayed quiet. this place is a lot more mature too.
I hope we all kick it here for a long time.

 

[srowe]

I came across some other groups too but they didn't look like anyone was all that active in the forums at all.

This one seems pretty good lol =)

 

[hanaa al baydany]

welcome Srowe to our world family.
we all have the same problems in different degree. therefore we can undestand each other.

If u need any thing don't hestate to ask.take care

 

[sdreiter]

I know how you feel

Hello, I have also recently joined the forum and have found just knowing that other people do experience similar problems helps. I know exactly how you feel. I have had 4 lots of surgery in the last 4 years including 2 resections in the last year. I made good recovery for about 4/5 months but yet again i'm suffering, so soon. I don' t mind the pain and all the unpleasant things the doctors have to do but i just can't get my head round it and feel extremely depressed. It has effectively ended my social life, one partner simply couldn't deal with it and I have recently separated again but this time beacause of my frustrations with the disease returning again. I simply don't know how to shake these feelings off and I fear they will turn me into a bitter person, it's just a horrible feeling:depressed:

 

[srowe]

sdreiter
everyone has their ups and downs with crohn's, I hardly have a social life either. I hope you feel better and that chatting on the forums or just reading the posts helps a little =)