New- Mom needs help for her little girl.

[Farmwife]

Hello. I can't tell you how happy I am to find this site. In order to tell every one about my wonderful 3 yr. old girl named Grace. I have to start the looonnnnggg story at the beginning. So please bare with me and my bad spelling. Between 6-12mo. old Grace was still spitting up huge an amount. She started having gas or abdomin. pains and stomach pains. Still to this day when the pains hit, she balls up and cries. This happened mostly at night but sometimes during the day.They last anywhere from min. to an hour. I have to give her meds. Her pains can be together or one at a time. The Doctor said try taking her off milk. We did. Still not better. Then at 1 1/2yr. old her knee and pee pee pain started. We took her off of corn, choc., wheat, refined sugar. Every thing worth living.lol For two years (honestly) we did not sleep solid through the night. 9 mo. ago I told the doctor I want to know what's going on with her. It's been to long!!! He took urine and blood. Blood work came back "off" and urine came back with trace amounts of blood in it. To the ultra-sound we went. Ultra-sound came back normal. My Doc sends up to a new spec. Doc.. He takes more blood and urine and all came back normal. The spec. doc. say no more he can do. However. He put her on stomach meds. Bummer! Still no answers. The stomach pains stop but the abdmon., knee and pee pee pains get worse. Now she stops eating. Just queit. Sleeps a lot. I go back and say still not right. He say GET HER OFF THE STOMACH MEDS NOW. She needs the acid in her stomach to help break down her food.
He take a stool sample. To his SHOCK she has c. diff. The doctor was hoping this was the cause of her pain. 2 rounds of Flagly and the c. diff is gone. As you might have guessed the pains has been having for two plus years isn't. She is still in pain. I will say she doesn't seem to be as "bad" as some of the others. She still has more good days then bad days.
OK info on her meds. We started out with baby gas drops but they stopped working. Then on to child. gas-x, then to adult gas-x, then to super strength gas-x and now kids ibuprofen. This has all been done to help stop her pains.
One thing I will add. Her pooping has never been to much of an issue. We will be going to see a G I Spec. in June or July we hope. I'll find out soon. Like I said I'm not sure if it's Crohn's but I would like to know what any one of you think about this. Sorry if I left out any info you need. To much to write.
Thank you, Farmwife and Grace's Mom

 

[mickey]

I would highly suggest trying belly rubs. A Chinese doc said to start on your right (ascending colon) side, go up above navel (using the navel as the center point), down left side (descending colon), under navel and back up to right side. Continue doing until pain/cramping ceases. You will hear gurgling and sounds, which means you are moving things along and waking up the belly (so to speak). Sometimes it will need to begin quite softly (if tender belly) and then as she gets used to it, a little deeper. It will eventually get to a point where she will ask for them as well, since she will feel so much better. Make sure her belly is warm (covered) after you are finished. Do as often as possible at first (she can do while sitting in the car, on the toilet, wherever). If she puts her head on your lap and then you rub her belly and have her cuddle with a blanket, she will find it quite soothing as well. This made a world of difference for me and I used this technique on my niece, who had horrible pains when she was a toddler. She still loves these at age 10! Any gassy baby will also relax after getting a belly rub. It will increase the circulation and bring blood to the area to help heal the trouble. Gets out the air bubbles....worth trying to see if it will give her relief... hope it helps! Drinking some ginger water (boil water, add fresh ginger) room temp or warm may also help keep the belly a little calmer.

 

[David]

Greetings and welcome

I'm so sorry to hear about the trouble little Grace has been going through, that's terrible

I see you found the Parents of Kids forum. That's going to be a HUGE resource as all the parents there are absolutely amazing.

Again, welcome. I hope they figure out what's going on with Grace soon.

 

[Angrybird]

Hello and welcome to the forum. I am sorry to hear about your little girl, I hope you can get some answers soon, you have come to the right place for lots of helpful info and support.

AB
xx