Newbie

[Okitsme]

Hello all,

My name is David and I guess I am still in the undiagnosed club at the moment.
Been cramping with very loose stools for about 4 years now. A couple of years back I had a perianal abcess and the specialist thought I had Crohns but after a colonoscopy it was ruled out because they found some kind of bactaria that was making me ill. Anyways a couple of years later I have now gone back to the doctor after a couple of really bad crippling cramping sessions he referred me to specialist again. Had bloods done which were normal, then an utrasound which also showed normal. I was then sent for a MRI which showed narrowing of the small intestine at the terminal illeum and a few other places further up. Got a colonoscopy booked in for next week. The doctor put me on Pentasa and said he will start me on steriods when he sees how bad the inflamation is. He is almost pretty sure its Crohns but wont commit till after the colonoscopy. To be honest I dont seem to have most of the symptoms of Crohns like weight loss and vomiting or anything else besides bad cramping and the narrowing in the small intestine. I am hoping its just something that is easily treatable so got my fingers crossed. Anyways will update once I get the results of the colonoscopy.

 

[David]

Hi David and welcome Thanks for joining and sharing your story.

I hope that it's something that's more easily treatable as well. But considering your narrowing of the terminal ileum and higher up, chances are it's not going to be something that you pop a pill for a few times and it's gone

I'm really sorry you're having to go through all of this but we're here for you. Let us know anytime we can help in any way.

All my best to you.

 

[Astra]

Hiya David
and welcome

hope you get a firm diagnosis, it's the not knowing that's the hardest.
Also, remember that everyone's Crohn's is different, I don't vomit, only done this once and that was enough, and as for weight loss, forget it, I'm fat!
Let us know how you get on with your scope, good luck
lotsa luv
Joan xxx

 

[Keepingfaith]

Just wanted to stop by & welcome you to the forum! If you have Crohn's, I hope it is easy for your doctor to get you into remission as well.

Everyone is different. Some people have debilitating symptoms, multiple surgeries and are constantly switching treatments. Others only have mild Crohn's with the occasional stomach ace and diarrhea. Either way, this forum is full of understanding people with a lot of experiance.

Take care!

:goodluck:

 

[Okitsme]

Hello all, thank you so much for all the welcomes. This forum seems to be a nice warm place to vent get information and advice.
I getting quite frustrated at the moment as I just want it all over now and get a dianogsis. Hopefully when I have my colonoscopy next friday I will have a few answers or at the very least a diagnosis. Been on the Pentasa a week now and dont feel any different except the fact I am so tired most of the time. I am not sure if its the Pentasa or possible Crohns that is making me feel this way. Lets hope Friday brings answers.....

 

[David]

With disease in the terminal ileum, there's a decent chance that you're low in vitamin B12 which can lead to vitamin B12 deficiency (very common in Crohn's patients). I'd strongly suggest requesting your levels be tested. We also have a wiki entry with some other possible reasons you may be feeling fatigued.

 

[Angrybird]

Wishing you lots of luck for Friday David, I too hope the scope gets you the answers you need and if it is crohns you have definetly come to the right place for lots of helpful info and support.

AB
xx