My problem seems to be caused by a combination of no longer having a colon or rectum but just a j pouch made from tail of small intestine so everything comes out little and often. Also, as I am due surgery soon I am desperately trying to increase my bodyweight so eat as much as I can all through the day and right up until bedtime.
In a strange way I have the benefit of enterocutaneous fistula so at least I save a trip or two by what is draining from abdomen.