One more smack in the face from the health gremlin

[Muppetgirl]

I am really done in at the moment. I recently saw a premature menopause expert (I'm beginning my thirties) as I'd been told conflicting things about my hormone levels and was having strange symptoms that were ruining my quality of life but not typical of menopause. The outcome was that I am defintely deep in the menopause, its just that it presents differently and usually more severely when its premature as the hormone levels are so much further off what they ought to be. The upshot was the hrt I had tried did not work as its meant for a 50-60yr olds and doesn't come close to what I need.

However, the level I need would also lead to my endometriosis growing out of control again. My endo has been severe and progressive, apart from the rectal/vaginal/ sigmoid disease, it totally destroyed my ovaries with huge endometriomas, led to resections of ureters, bladder, pelvics veins and then started to grow outside of my pelvis. It destroyed my fertility leaving me childless, threatended my life and led to more surgeries (inc a radical hysterectomy) than I care to remember. The thought of going back to this is horriifying, yet I cannot cope with the symptoms I am having right now. I also have osteopeania/osteoporosis, so I need the hormones. I cannot tolerate calcium and the acid tx becuase of my digestive issues.

I have been left with a 'choice' between two options both ruinous to my health. And I'm gutted. I had been told this could happen but I didn't think it would be so soon. I want to scream because the healthy folks around me really do not get it. I've been managing an obstruction recently. The last few days my bowel has been behaving as though I'd taken a bowel prep, although with more pain. Sudden urge, seconds to get to toilet, then pure liquid. I am catheter dependant which I do myself, but I am struggling with leaks at the moment. I've had to cancel appointments for another complication as I just can't find the headspace. So it just feels like everything at once at the moment. I know it won't always feel this way. I guess I just needed to get it out there. Sorry this is so long. If you've got this far, thank you for reading.:hug:

 

[DJW]

So sorry mupetgirl.

:ghug:

 

[Tony H]

Really hope you feel a little better soon Muppetgirl , thats the great thing about this forum , you have people here that really understand what you are going through and it helps to vent sometimes ,and there is always someone that will listen and that really helps I feel ,
Tony

 

[Nym]

Hi Muppetgirl, sometimes just reading about what others are doing to treat similar issues is almost therapeutic in itself. Some of these things might be worth a try. http://www.earthclinic.com/cures/endometriosis.html

I personally drink organic black strap molasses and bi carb soda each day to treat crohn's.

All the best ♥

 

[UnXmas]

I'm sorry for the late reply, I only just read this. I have a lot of hormone problems that mean I'm infertile. A lot of people don't seem to understand just how devastating this can be, and how hard it is to be in a world where having children is taken for granted as the most important part of life, and regarded as a choice, it makes me feel terrible sometimes.

How are you doing now? Are you any further forward with managing your health problems? I hope you're managing ok. If you ever want to talk about hormone issues let me know, because I have an awful lot of them!

 

[Muppetgirl]

Thanks unxmas, that's very kind of you. Sorry you are struggling with infertility. I'm dealing with the news about my treatment better now, thanks for asking. I tend to reel in the first few days to a week after really bad news, but then I just get on, what choice do we have really. For me it was the double bind side of it that really kicked the boot in, leaves you feeling somehow responsible for whichever disease you protect at the expense of the other. But hey I've got this far I can keep at it!