A had her GI appointment today and I feel that we are one step closer towards some real answers. My first questions had to do with the discrepancies in the x-rays and the doctor admitted that because the Sitz x-ray was taken at our local clinic he only received a report from the radiologist at that clinic and not the actual image. He said perhaps she was not constipated after all. My thoughts exactly. He also said that her current laxative dosage appears to be too much so we are cutting out the Ex-lax. That should definitely help.
He's concerned that she is still passing blood but not overly concerned just yet. He ran some more labs to make sure she hasn't become anemic and also to check some inflammatory markers. He's hoping we'll catch something this time.
He took a look at her "rash" and believes it is Erythema Nodosum but wants a dermatologist to biopsy it. As soon as a new nodule appears we are to call the Pedi immediately and she will call the Dermatologist and have us seen that day. If we can get a definite diagnosis of EN that is one more piece to the puzzle and closer to a diagnosis of IBD.
At this point the GI believes she does have IBD or possibly vasculitis. He just wants to be sure. He's going to review the slides from her previous scopes done at another hospital to see if something may have been missed. We're also going to do the pill cam in hopes we'll find something definite there. I'm hopeful.
We also met with the dietitian who reviewed A's diet and felt that her intake was more than adequate. She and the doctor are both concerned about A's lack of growth so the doctor wants to start her on Periactin. He hopes to stimulate her appetite even more and hopefully settle her stomach a little as well. Anyone else had a child take this medication?
So, while I'm a little overwhelmed with the upcoming tests and appointments....I'm also very hopeful that we will finally have a diagnosis and A can start feeling better.
He's concerned that she is still passing blood but not overly concerned just yet. He ran some more labs to make sure she hasn't become anemic and also to check some inflammatory markers. He's hoping we'll catch something this time.
He took a look at her "rash" and believes it is Erythema Nodosum but wants a dermatologist to biopsy it. As soon as a new nodule appears we are to call the Pedi immediately and she will call the Dermatologist and have us seen that day. If we can get a definite diagnosis of EN that is one more piece to the puzzle and closer to a diagnosis of IBD.
At this point the GI believes she does have IBD or possibly vasculitis. He just wants to be sure. He's going to review the slides from her previous scopes done at another hospital to see if something may have been missed. We're also going to do the pill cam in hopes we'll find something definite there. I'm hopeful.
We also met with the dietitian who reviewed A's diet and felt that her intake was more than adequate. She and the doctor are both concerned about A's lack of growth so the doctor wants to start her on Periactin. He hopes to stimulate her appetite even more and hopefully settle her stomach a little as well. Anyone else had a child take this medication?
So, while I'm a little overwhelmed with the upcoming tests and appointments....I'm also very hopeful that we will finally have a diagnosis and A can start feeling better.
I never think of these things until I get home. 
