- Joined
- Apr 4, 2011
- Messages
- 23
other symptoms
Hi All - Well, we decided not to add azathioprine to the cimzia. Too scary, esp given Hannah's history with azathioprine. She is back on the gluten free diet and her gut seems to be behaving. She is complaining of severe lower back pain. This has happened before and we've always attributed it to the flares, yet her most recent labs indicate she shouldn't be flaring and she isn't having other flare symptoms. I know better than to do this, but I went surfing and now I am wondering about the possibility of ankylosing spondylitis. Her Crohns doc has been saying all along that he thinks she might have something that just looks like Crohns, but isn't b/c of her atypical responses to meds. I don't think changing from an IBD to AS diagnosis would help though as the treatments are mostly the same. Sigh. . . she also has ongoing (esp in the winter) issues with extreme dry skin on her hands (it looks like gloves - right up to her wrists) and even though it doesn't look like psoriasis, sometimes I wonder. Mostly I just want something to help my sweet girl be able to have less pain and more normalcy in her teen years. Any thoughts?
Hi All - Well, we decided not to add azathioprine to the cimzia. Too scary, esp given Hannah's history with azathioprine. She is back on the gluten free diet and her gut seems to be behaving. She is complaining of severe lower back pain. This has happened before and we've always attributed it to the flares, yet her most recent labs indicate she shouldn't be flaring and she isn't having other flare symptoms. I know better than to do this, but I went surfing and now I am wondering about the possibility of ankylosing spondylitis. Her Crohns doc has been saying all along that he thinks she might have something that just looks like Crohns, but isn't b/c of her atypical responses to meds. I don't think changing from an IBD to AS diagnosis would help though as the treatments are mostly the same. Sigh. . . she also has ongoing (esp in the winter) issues with extreme dry skin on her hands (it looks like gloves - right up to her wrists) and even though it doesn't look like psoriasis, sometimes I wonder. Mostly I just want something to help my sweet girl be able to have less pain and more normalcy in her teen years. Any thoughts?
