Parenting an IBD Kiddo

[Mehita]

You know you're an IBD parent when...

- even in a dead sleep at 2:00am your eyes pop open when you hear the bathroom door close .
- you have more than three "hats" in your house.
- you've had poop in your refrigerator.
- you buy the good toilet paper.
- prednisone is a stock item in your pantry.
- you cry yourself to sleep at least once a month
- you hide popcorn.
- friends ask you to interpret their lab results.
- you check PubMed daily.
- you have a Bristol Stool chart in your bathroom.
- you love seeing #4's ^^^
- you send the school nurse a holiday card :hug:.
- you have a few good poop jokes up your sleeve.
- you know the fiber content of at least 10 food items.
- you know what ESR, ALT, CRP, CBC, TPMT, MLP, NPO, NG, MRE, TI, and 6MP stand for.

Did I miss anything?

 

[Patricia56]

- you have to explain that IBD is not IBS on a regular basis to relatives and friends
- you also have a lot of practice saying "thanks for your concern" (through gritted teeth) to intrusive people who offer all kinds of wacko treatments or say stupid things about the stomach flu, etc.

 

[CarolinAlaska]

You forget that not everyone in the world feels comfortable discussing the finer details of a BM at the dining room table...

You know all the tricks for getting calories/nutrients in your child, but also know that most of them don't work 70% of the time for more than 1-2 weeks...

You feel like the world is out of control and lose sleep when your child is in flare and you don't know what will help them - you stay up all night trying to figure it all out.

Every little illness, cold, sore throat brings fear that your child will get sick again and your current effective treatment will no longer work.

You are ready to fight to the death every bully child (or his/her mother) that gives your child a hard time...because honestly, hasn't he/she gone through enough?

An ad for "Poo-pourri" seems like a godsend and you search to see who to order it from ASAP!

You post every pound gained by your child on the IBD parents forum and you are encouraged by dancing bananas and piles of poop.

 

[DanceMom]

- the pharmacy techs know you by name
- you celebrate when your child finally makes it back on the growth chart
- you participate in the CCFA Take Steps walk with the hops that one day your child will be cured

 

[crohnsinct]

You don't leave the house without a spare pair of underwear and travel pack of toilet paper.

You know where every bathroom in your town is located

You have had a fight with a store clerk demanding they let your child use their restroom "not for public use" and have flashed the CCFA card and quoted the law

 

[Tesscorm]

Great thread, Mehita!

- Your list of BFFs include Dusty Kats, Farmwifes, Queens (Gothel), Little Penguins and Little Sunshines !

- you know what ESR, ALT, CRP, CBC, TPMT, MLP, NPO, NG, MRE, TI, and 6MP stand for.

One question... does MLP stand for My Little Penguin? :lol:

 

[Mehita]

One question... does MLP stand for My Little Penguin? :lol:

I was wondering if anyone would catch that! :rof:

 

[Tesscorm]

One of those 'what doesn't belong in this group?, eh.' :lol: The only one that needs no improvement! :thumright:

 

[CarolinAlaska]

 

[my little penguin]

Your child wants to "look" at the neighborhood dogs pile of "poop" so he can figure out if there is anything wrong:ylol2:

 

[Farmwife]

This has to do with Parents to younger IBD'ers.

1 You walk past the bathroom door multiple times to remind them not to flush.
2 You hide the "hat" because you fear them wearing it.
3 Sales on pull-ups excites you.
4 Sales on Miralax gets you super excited.
5 The lady at the toy store asked if she went to the hospital again.
6 You come to this forum to ask questions and see if their kids are "special' like yours.


:ghug: