Sharon... this is spooky!
Peripheral neuropathy is my other disease. Although I have asked the question many times, no consultant has ever confirmed that there is a link between crohns and PN.
However, the term peripheral neuropathy covers a lot of different aspects of the disease. I have had loads of tests and been found with no particular deficiency which would cause it (B12 is one notable one). I've been told that it is likely to be genetic (does that sound familiar?) and I've now found that one of my aunties suffers from it (but not CD)
Mine manifests as loss of nerve function - both motor and sensory, starting at my toes and slowly working up my legs... very slowly, in fact... it's taken about 12 years to reach my ankles. No pain, or anything, just numbness.
It's a good idea to get your toenails cut by a chiropodist, as you may not be aware of any damage/infections in your feet (rather like a diabetic), and be careful when walking... I now use a rather swanky cane, as you could be a bit unsteady on your feet... that's how I broke my ankle recently.
If you're the same as me, it's a very slowly progressing disease which can be managed with a bit of thought and common sense.
They may want to do some nerve conduction tests, which is not entriely pleasant, but at least it's a change from having your intimate parts probed!
I'd be interested to see if anyone else comes up with something. I wouldn't rule out a link between CD and PN at all. And let me know if you have any other questions.
