Hi,
I had my pip assessment today, the lady who came was lovely but I think she missed a lot of questions from the points chart that I've seen. I've had 2 Operations, one a laparotomy and small and large bowel resection, in the past 5 months. Also I had a bowel resection back in 2010. Anyway back to this assessment. I'm in agony of late, it's been getting worse since my operation in 2016, my bowels have become so frequent I can't be far from a toilet or I'll lose continence. I have severe constipation but at the same time explosive diarrhea that feels like I'm defecating pure acid. My spincther has tightened to the point of a black hole and pulls on my lower back and I can't walk further than my toilet (6 metres) and I'm forced to sleep downstairs (downstairs bathroom). My stomach cramps to the point that I can't bend to put on socks or wash below where my arms naturally fall. I get dizziness caused by the pain from both bowels and rectal area. I've fallen a few times and it's dangerous for me being on blood thinning medication. Also I have DVT which is a not a massive issue apart from remembering to take the Rivaoxiban and get my missus to put my circulation stockings on. I as lap have anxiety which I'm being treated for but it affects my crohns and makes it worse. I'm not worried about anxiety as a standalone problem, it's only a problem for me when it couples with my crohns. Now I know she missed main questions and I know I would definitely get enhanced care and enhanced mobility if it was all fair and good. I'm bad roughly 4-5 days a week. The other 2-3 days I'm almost normal, I can't climb Everest or anything but I can go to work for 4-5 hours on them days, have a short walk etc but I'm stressed about the whole thing, worried about the outcome etc. I had to use the toilet when she came to my house towards the end of the assessment, I was in so much pain I was breathing very heavily and crying in pain, I came out of the bathroom in tears hardly being able to walk. She offered to make me a tea or coffee before she left but I just wanted to go to sleep so I declined.
She was lovely and was supportive but I can't help thinking 50 minutes was not long enough. Maybe she left because I was crying in agony. I'll find out what she wrote in a week or two.
Anyone else had a home visit like this?
I had my pip assessment today, the lady who came was lovely but I think she missed a lot of questions from the points chart that I've seen. I've had 2 Operations, one a laparotomy and small and large bowel resection, in the past 5 months. Also I had a bowel resection back in 2010. Anyway back to this assessment. I'm in agony of late, it's been getting worse since my operation in 2016, my bowels have become so frequent I can't be far from a toilet or I'll lose continence. I have severe constipation but at the same time explosive diarrhea that feels like I'm defecating pure acid. My spincther has tightened to the point of a black hole and pulls on my lower back and I can't walk further than my toilet (6 metres) and I'm forced to sleep downstairs (downstairs bathroom). My stomach cramps to the point that I can't bend to put on socks or wash below where my arms naturally fall. I get dizziness caused by the pain from both bowels and rectal area. I've fallen a few times and it's dangerous for me being on blood thinning medication. Also I have DVT which is a not a massive issue apart from remembering to take the Rivaoxiban and get my missus to put my circulation stockings on. I as lap have anxiety which I'm being treated for but it affects my crohns and makes it worse. I'm not worried about anxiety as a standalone problem, it's only a problem for me when it couples with my crohns. Now I know she missed main questions and I know I would definitely get enhanced care and enhanced mobility if it was all fair and good. I'm bad roughly 4-5 days a week. The other 2-3 days I'm almost normal, I can't climb Everest or anything but I can go to work for 4-5 hours on them days, have a short walk etc but I'm stressed about the whole thing, worried about the outcome etc. I had to use the toilet when she came to my house towards the end of the assessment, I was in so much pain I was breathing very heavily and crying in pain, I came out of the bathroom in tears hardly being able to walk. She offered to make me a tea or coffee before she left but I just wanted to go to sleep so I declined.
She was lovely and was supportive but I can't help thinking 50 minutes was not long enough. Maybe she left because I was crying in agony. I'll find out what she wrote in a week or two.
Anyone else had a home visit like this?
