Post Prednisone Energy

[myboy12]

My son has been off Prednisone for 3 weeks and has just been lacking energy and more tired than normal. We called his GI and she said it will take some time for adrenal function to become normal again and for regular energy levels to return.

Just wondering about everyone's else experience is post Prednisone as we worry the lack of energy could be a sign of returning inflammation. Otherwise, he feels fine and has no symptoms. Blood work to be done next week.

 

[fozheart]

Wonderful that other than the fatigue, your son is feeling good! I have been on and off of prrednisone for 20 years, and it is just a very rough transition. He has youth on his side though! I think he will come around, but of course it is good to let the doctor know, in case an adjustment needs to be made. Good for him that he is off of it! :dusty:

 

[Sascot]

Not sure about Pred, but I find my son is usually quite tired even though the docs are happy with everything. Hope your sons energy levels pick up

 

[Mehita]

My son was always anemic after coming off pred. Not sure why? It might be a combination of things? I think the labs next week will tell you a lot. Glad he's feeling better otherwise!

 

[imaboveitall]

Violet who used pred for 18mos always had an energy low when her dosage went below 20mg and when we d/c with any wean faster than 1mg/week. Very expected and usual with pred wean for them to become a tad Addisonian. V's energy drop lasted several weeks.

 

[Maya142]

Yup, same experience as above, my daughter always gets exhausted when she comes off Pred. Hopefully, he'll start feeling better soon.

 

[DeniseE]

I finished my pred taper almost 2 weeks ago and am still tiring very quickly. I found during the taper that every time I reduced the sose I was so tired for the first 4-5 days and then things stabilized.

 

[CrohnsKidMom]

My son was on prednisone last yr but didn't notice being tired during the taper. But, I think that's because our GI does a very slow taper-just 1/2 mg a week-took months to taper off!

 

[SupportiveMom]

I have been worrying about the same concern over inflammation for my d. She is coming off the prednisone, and even with the colonoscopy showing healing last month, her symptoms are coming back with a vengeance when at the 10/15 mg taper. Glad your son has had no symptoms come back. I hope the energy returns soon!

 

[myboy12]

Unfortunately, the lack of energy was part of a mild flare, he is now back on a short dose of Prednisone and an increase in 6mp. Still waiting for 6mp bloodwork to come back to show his levels. So worried this is an indication the 6mp will not be enough.

This disease is so frustrating! Sorry to hear your daughter's symptoms are returning. :ghug:

 

[SupportiveMom]

Really hoping the symptoms aren't the Crohn's but just side effects of pred tapering!

 

[my little penguin]

Hang in there . It's frustrating but hopefully soon you will find that sweet spot for the right drug.
It took DS over a year and four to five different drugs to get there
At two and half years things are much better .

Just one day at a time .

 

[myboy12]

Hope it is from the taper too! Sending positive thoughts!

 

[SupportiveMom]

Penguin we are now at 1.5 years trying to 'find' the right combination. I feel like we aren't even close. I'm starting to give up on that hope. Now I would just settle for manageable spot. Dani has already decided if we can't find that spot by September she wants to have the surgery conversation again. I don't blame her but will put it off as long as possible if I can't indefinitely. Meds Suck!!

 

[Maya142]

I hate to say this but it my daughter has had arthritis (and now Crohn's) for four years now and has only had 9 months or so of remission. We're now back on a combination that has worked for her in the past, and she's beginning to feel better again. It can take a long time to get things even back to semi-normal or manageable, unfortunately.