crohnsinct
Well-known member
- Joined
- Mar 10, 2012
- Messages
- 6,348
Hey there! O was dx'd 6 1/2 years ago and has been on Remicade from the beginning. About two years ago she fell out of solid remission and has been symptomatic and labs are returning elevated.
She did a stint of steroids this past winter and the GI increased her Remicade to 10mg/kg every 4 weeks to try to recapture response.
She is off steroids now and still having some symptoms and off labs. She isn't off the rails but based on her symptoms (urgency, bit of blood), her GI thinks it is her proctitis. We discussed topical steroids suppositories, foams etc but she is on a mission trip this summer and really can't do those easily. So the new plan is another stint of steroids with a transition over to Uceris.
For those who deal with Proctitis, have you used Uceris and has it worked for you? Did you come off? He is hoping that once she is back in solid remission again (increased Remicade to 15 mg/kg every 4 weeks) Remicade will be able to hold her.
She did a stint of steroids this past winter and the GI increased her Remicade to 10mg/kg every 4 weeks to try to recapture response.
She is off steroids now and still having some symptoms and off labs. She isn't off the rails but based on her symptoms (urgency, bit of blood), her GI thinks it is her proctitis. We discussed topical steroids suppositories, foams etc but she is on a mission trip this summer and really can't do those easily. So the new plan is another stint of steroids with a transition over to Uceris.
For those who deal with Proctitis, have you used Uceris and has it worked for you? Did you come off? He is hoping that once she is back in solid remission again (increased Remicade to 15 mg/kg every 4 weeks) Remicade will be able to hold her.
