Psc

[mdd]

hey anybody else have PSC? Cause by Crohn"s!

 

[Cross-stitch gal]

I do not. But, if you'll click on this it'll show some popular threads of people talking about it. Take care. xxxx

http://www.crohnsforum.com/wiki/Primary-Sclerosing-Cholangitis-PSC

 

[Manzyb]

I do, mdd. I was just diagnosed in June this year.

 

[mdd]

oh my how are you doing? I had it a few years. The crohns dr see them once a year. do blood work and put stints in . and take them out. Now the each want to see me every 6months. they said I would need a liver transplant in my bowel ducks. I fight with all my doctors. question everything. You get that way when your ill. Let me know how are you keep intouch

 

[mdd]

you take care one day at a time

 

[Manzyb]

I am doing okay. We're pretty sure I've had it a few years too, since before my daughter was born. I got a really bad cholangitis attack when I was 36 weeks pregnant with my daughter. They did an MRCP but at the time only showed a "dilated bile duct" so I wasn't diagnosed. This past year, my liver enzymes kept getting more and more elevated so we did another MRCP and it showed the classic "beading" in the bile ducts. I had a liver biopsy and also have grade 5 fatty liver disease (probably from all the meds all these years for Crohn's). I haven't had any stents or anything let, thank goodness.

I'm 18 weeks pregnant with my 2nd child, and docs are keeping a close eye on me to make sure my liver enzymes don't get too crazy again. We're keeping our fingers crossed I don't get another Cholangitis attack, but chances are it will probably happen again.

I'm early stage PSC right now, but they told me as well a liver transplant will be in my future. Are you listed yet? Did they give you a MELD score? I don't have one yet thankfullly. My liver is still in decent shape

You take care of yourself too! It's a scary disease.

Oh, also, there is a group on facebook that has been a great wealth of information for me. It's called PSC partner's seeking a cure. They're great there!

 

[mdd]

Ok, well no I'm not on a transplant list yet! They are watch me closely. if I feel a pain any where I call for blood work. t do not wait lone maybe two days to judge it. not a mussel. I workout at the gym, for my heart. had bypass 4 yrs ago that put me back. complication's, but I got though. the gym helps forget, sometimes. cannot work anymore. so im on lots of meds. and kidney stones , yea im a mess. abut I go on. Like you you do for your kids. Its now that the family says when moms ready we will go. no presser only I put that on. take care thanks for the imfo ill try them.