Remicade every 6 wks

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Joined
Jul 16, 2009
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I have been trying to taper off entocort for months now. Everytime I try I flare and have to increase it back up. I am currently recieving remicade every 8 wks. My GI suggested going on Imuran with the remicade to get me off the enotocort. We decided that we didnt need that yet. Now he wants me getting remicade every 6wks to see how I do and then try to taper me off. I am a little upset about this. It seems everytime I try to taper off it is at the end of my remicade cycle. I wanted to try tapering off right after my infusion and see how it goes.
Does anyone know if I go back to remicade every 8 wks if I am doing well?
 
For me the increase in Remicade frequency was because I was not feeling well. I went from 8-6-4. Every 8 weeks seems to be the norm if you are feeling well.
 
Yes - if you try 6 weeks for a few cycles and are feeling fine, you can stretch it back out to 8 weeks.
One member on here had hers stretched out to 10 weeks inbetween every infusion, but she's not on here any more to ask her how she's doing now.
I went 10 weeks inbetween on of mine when my insurance approval got messed up.
Good luck tapering your entocort.
 

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