I'm 31 and was diagnosed 3 years ago. I've just had my second infusion and I feel tired all the time. I'm constantly nauseous and have episodes of shortness of breath. I'm always dizzy and feel faint. But when I contacted my doctor and went to ER they were not acting as though it was a big deal. Labs came back normal but I feel far from normal. I just feel sick. I don't know what to do. Any advice would help.