Rowasa advice...

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Jun 4, 2012
Messages
44
My son spent the weekend at Children's Mercy and had a colonoscopy done Friday and a MRE done Saturday. Should receive the results this week.

Here is what I know so far from the scope...the main diseased part is up to about 40 centimeters in. This is in the sigmoid colon/distal rectum area (he has prolapse also very bad). She said where the large and small bowels meet at the terminal illium, it looks normal. So I am going to pray, pray, pray that the small bowel results come back looking normal.

She has put him on Colazal and Rowasa, saying many kiddos have had much success with this. We tried Rowasa before, over a year ago, and it was a mess! (So we ended up switching to Canasa suppositories).

Anyways...as embarrassing as it is...is there an easy way for the enema to be administered? Have any of your kiddos had to use this and have they done it on their own? I have helped the last two nights but if he goes to visit his dad, I wont be around to help and I am not sure how to show him to do it himself.

After a month, we are going to see how his symptoms are. Because he already takes Remicade every four weeks, the next option would be surgery to removed the diseased part. I sure hope combining these two mesalamines help him get some relief! Any advice would be greatly appreciated! Thanks :)
 
I'm so sorry your son is going through this. It's so hard watching our kids suffer through any illness/disease.

How old is your son? The reason I ask is because my daughter spent some time at the children's hospital this last summer for severe constipation. I had to help her with some enemas. She was 8 and she couldn't comfortably reach to help with the enema. Is he old enough to reach easily? Young kids just have short arms.

I hope everything goes well for him. I'll check back to try to help you out a little if I can.
 
Big hugs
DS has done the suppositories but not the enemas -
I know at one point that was next on the docs list but things calmed down.
Have they looked at another med other than remicade since it's not keeping all the inflammation down ?
Antibody tests ? Remi level tests ?
 
My daughter did hydrocortisone enemas but she 16 and had no problem doing them herself (not that she wanted to…but that's a different story).
No experience with Rowasa, sorry!
 
My son's main disease is in rectum and sigmoid also. But terminal ileum looks inflamed also. We also go to childrens mercy in kc. We've been termed refractory by kc GI's and have been deferred to mayo. As for rowasa, our son in young so we administered it. Didnt really see much in results.
 
Back
Top