Seeing a GI tomorrow - fingers crossed

[hannah-rose]

Hello all,

I've got an appointment with GI tomorrow, after a colorectal surgeon became convinced I have crohn's (I went to my GP, she raised an eyebrow).

So I guess tomorrow with all my results infront of him and after an examination, he should be able to tell me whether he thinks I could have crohn's or not. I'm keeping my fingers crossed my new GI will be lovely, and that he'll also tell me he thinks it's unlikely I have crohn's. I'm also keeping my fingers crossed that if he does say this, he'll have some clue of how to fix me! God you'd think someone in the medical profession could just sew me up or something. (If you have'nt read my previous threads I have a BIG fissure which WILL NOT heal no matter what I do, grr). If I don't haev crohn's I find it hard to believe we can send a man to the moon but no one can heal up a little wound on my body.

Anyway, the alternative will be that he thinks I might have crohn's. I guess in that case you'll be hearing a lot more from me

Hope you're all enjoying the four day weekend

Hannah x

 

[JetWhite]

Good luck Hannah Rose :goodluck:

I hope the appointment goes well and you have a good consultant, it makes such a difference.

 

[littlemissh]

Yes , good luck and lets hope its not crohn's.

 

[hannah-rose]

I'm back from my doctors appointment, and first off, let me say, he is the nicest man I've ever met, I genuinely wanted to give him a hug (although I felt at the time this would be inappropriate lol). Compared to the horrendous time I've had with my colorectal surgeon, this man is amazing. Maybe it's private health care I don't know, but I was absolutely bricking it before I went in, and he was so lovely, he started asking me lots of questions like my age, where i worked, what uni I went to etc. he was asking about my whole life since uni and I started telling him about travelling etc. and he was genuinely interested and attentive, I felt better immediately. Then he asked for my history and because I'm me I'd very usefully written it all down in bullet points for him (it's a very long history) and he joked that I was the perfect patient lol. He even asked about me getting malaria before, he was so thorough. Then when he'd finished reading we chatted about my problem and he listened very carefully and then he asked to examine me and was very nice and he did have to stick his finger up my butt (not nice) but even then we were making jokes and the nurse was giving my arm a little stroke. Afterwards we had a lonnnnnnnnggggggg chat about everything and the possibility of crohn's and my test results, he even made a joke that he wanted me to come and work for him because i was organised enough to arrange for my colonoscopy results to be faxed over and i said if he looked they should be in my folder! He genuinely was an awesome guy, funny, understanding, really listened to me and answered all the questions I'd written down (he looked at them and made a point of how important it was that he answered every one). He was clearly incredibly knowledgeable and experienced which is always a bonus too.

The upshot at the moment is that he doesn't want me taking the pred steroids that my evil CRS prescribed (thank god) and that all the results from my tests are inconclusive and although there is that chance my problem could be linked to crohn's, my results can also be the result of other factors. I tried to get him to lean one way or the other but he said he doesn't like to give a diagnosis unless he's positive that it's correct. For the moment he's put me on a course of metronidazole to see if reducing the bacteria helps the wound heal. He also said if it was crohn's related he'd be using a different drug to pred anyway (imaxi...something?) he said usually peri-anal crohn's looks very bad with fistulas and scarring etc and ulcers usually look different to mine too. So I'm thinking for the moment he's not at all convinced it's crohn's and is treating it as a non-healing wound, but he's smart enough to keep an open mind (unlike my surgeon). He's going to analyse my biopsy results himself and get the rest of my history from the hospital and I'm to see him in six weeks. He also helped me with my BUPA stuff to make sure I was covered.

I'm very, very happy you can't help being ill, but seeing a good doctor certainly makes you feel better.

Hannah

 

[littlemissh]

I'm really happy for you and let's hope it isn't crohn's and you heal up quickly.

 

[Astra]

Hiya Hannah

That's great news about your new doc, my new GP is Heaven sent, he saved my life last year by phoning an ambulance.
I've been on Metronidazole, you might have seen it here on the forum as Flagyl.
Don't worry if you get a metallic taste in your mouth or a furry tongue, all normal.
I wonder if your doc meant Infliximab?
Overseas they call it Remicade!
If that's the case, it should heal you quick.
Well done, now on the road for an answer
xxxxx

 

[JetWhite]

That's terrific new Hannah Rose :thumright:
I am really pleased for you

Here's hoping things just continue to improve

 

[hannah-rose]

Thanks guys feels great to have the support.

I can handle a furry tongue my doctor was really funny about the metronidazole, he was like 'these are practically the only antibiotics you can't drink on, the rest you can drink gallons on!' Sound medical advice lol. I'm on holiday to Rome in 3 weeks, I just hope they don't make me too nauseas to eat all the pizza and gelato!

I think he did mean infliximab, I found it on the nhs website, it's really good as my knowledge of crohn's isn't that indepth http://www.nhs.uk/Conditions/Crohns-disease/Pages/Treatment.aspx I was interested to see it says it's usually tried after other medications have failed, but I trust my doctor and If I'm not healed by my next appointment I'll take this info with me to ask him about :thumleft:

 

[JetWhite]

Thanks guys feels great to have the support.

I can handle a furry tongue my doctor was really funny about the metronidazole, he was like 'these are practically the only antibiotics you can't drink on, the rest you can drink gallons on!' Sound medical advice lol. I'm on holiday to Rome in 3 weeks, I just hope they don't make me too nauseas to eat all the pizza and gelato!

Marvellous :dog: Have a fantastic holiday :banana: