Sick n Tired of being Sick n Tired

[Pharr]

Alright...time to get this all out

I am glad i found you all.

my name is Christine, my friends call me Chrissy and my dad calls me Buggs.

I have Crohn's.

I hate Crohn's.

I was told August of this year that all my problems since 1990 have been from Crohn's. I lost my spleen (well didnt quite loose it, it ruptured and had to be removed) in "88. After that I was sick off and on and was told it was due to my low immune system.

I hate doctor's.

In 2001 I ended up with meningitis (sp) and in ICU for some time and throughout the year in and out of the hospital with messed up white blood cell counts....

In 2002 I had to have emergency hystorectomy due to a cyst on my ovaries that burst and I would not stop bleeding. Couple months later and I had to have emergency gal bladder surgery.

In July of this year I passed out twice (once behind the wheel, thank GOD I was in park!) and then blood in my stools, all the diareaha, abdominal pain, nausia and just pain-flu like body aches all the time-at the same time passing a couple kindney stones. I pass anywhere from 2 to 8 stones a month.

I hate kidney stones.

Doctor admitted me, had a million tests including a colonoscopy. Doctor removed a cyst on my colon.

Last week my regular doctor called and said they found a lesion on my liver. He referred me to another specialist but have not heard from them on that as of yet.

I am currently taking Pentasa-4000 mg a day, Prilosec, phentergen-which is not working. I went off of my antidepressent due to lack of money and figured my Pentasa was more importantant, so I am all jacked up emotionally right now.

My worst is the pain in my hips, knees, back and neck. The nausia is something else i cant seem to control. The blood in my stool is not as bad, and I can deal with the diareaha.

I hate puking.

I do not have an appetite and have to force myself to eat. I used to weigh close to 3 bills and am now well under 200. I believe I am about 150 right now. The weight loss has been nice and all but I know it is not from exercise and a healthy body!

I see the doc this afternoon and am going to ask him about Marinol for nausia. Is this something anyone else has tried or is currently using. I also need to find out some sort of pain management. Percocet is the only thing that gives me any relief.

I have not been able to work a constant schedule (55 hours a week is what I need to be putting in) and am wondering if others are able to work outside of home?

I am fed up with feeling this way.

I am tired of hurting.

I need a light at the end of the tunnel, cuz right now I am sitting in the dark in a big pile of stinky poo.

 

[hippie4lyfe]

welcome, i'm sorry and we all feel your pain and struggle. the only thing i can think of that helps me with nausea is ginger tea.

 

[Guest]

hi Chrissy, & welcome.

awwww i can feel your fedupness (i make up words as i go along, you'll get used to it lol) from here, and don't blame you one bit. you've been through so much! and still searching for that little light of hope. it's there.. don't give up. sometimes we get on a downward spiral with Crohns, one thing kicks off another.. but by the same token, once the Crohns gets under control, lots of other little bits of us stop misbehaving in time too.

i hope very soon you will feel you've begun to turn that corner. really glad you found the forum - the support & understanding on here is so good, and so precious

 

[teeny5]

Sorry to hear that you are feeling so bad. I had a hard time working until they put me on stronger meds. Now I seem to be fine as long as I don't get overly exhausted. Hope your doc. helps you out!