So exhausted

[penny]

so exhausted

hi there hope you all keeping well .ime so tired ad aprox 4 hours sleep since tuesday.just thinking how much longer i can keep this lack of sleep up for .ime so restless my body saying stop but my brain wont shut off.still not eating much the more i eat the more loo visits i make realy thirsty all time .oh i do hope i manage few hours sleep real soon.:yfrown:

 

[Gue33]

Oh dear. That's not good. I see this was posted yesterday. Any change?

 

[tiloah]

I'm having insomnia too at the moment. Not fun! Hope you get some sleep.

 

[Sybil Vane]

I'm with you and Diesanduhr. I am so exhausted but my mind is going a mile a minute. It's not a fun thing when you can't sleep through the pain.

 

[Terriernut]

Penny, sounds like you need some help luv. I hope you are sleeping! Are you on pred? You also sound very dehydrated, and frankly, you probably need a trip to the A&E.

Can you update us as to how you are?
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

 

[penny]

Oh dear. That's not good. I see this was posted yesterday. Any change?

hi there managed to get cuple hours sleep last night so beter than nothing i supose

 

[penny]

Penny, sounds like you need some help luv. I hope you are sleeping! Are you on pred? You also sound very dehydrated, and frankly, you probably need a trip to the A&E.

Can you update us as to how you are?
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

hi there managed to get couple hours sleep last night better than nothing .drs just dont listen one even told me to read a book you no sometimes they just annoy me .ye on pred 3omg hope you ok and thanks for post .

 

[Terriernut]

Pred does this to me...cant sleep a wink. But because you have the big D and you are so thirsty, frankly you are asking for trouble. Dehydration can kill, and that is what I'm worried about for you! If you are having that much D and no sleep, and that thirsty...no no no...You need to go to the hospital.
Even if you think you are ok, your body isnt. And reading a book wont help you hydrate! Your body needs fluids of the IV kind.

 

[penny]

Pred does this to me...cant sleep a wink. But because you have the big D and you are so thirsty, frankly you are asking for trouble. Dehydration can kill, and that is what I'm worried about for you! If you are having that much D and no sleep, and that thirsty...no no no...You need to go to the hospital.
Even if you think you are ok, your body isnt. And reading a book wont help you hydrate! Your body needs fluids of the IV kind.

ime supose to be starting humira tuesday they delivering injections but the nurse was supose to ring me monday to come out an show me what to do but guess what no phone call .ill giv my dr ring in morn an get appoint my thirst always seems to be worst on an evening.

 

[Terriernut]

Penny, yes ring your GP and GI in the morning, but if I were your GP, you'd be in hospital.

Are you drinking at least some lucosade or powerade to help with the potassium and electrolites? Magnesium is also depleted when you are dehydrated. Are you taking any supplements for that?

How about salt? Anything at all? Have they given you Ensure or anything to help with your calorie intake?

 

[penny]

Penny, yes ring your GP and GI in the morning, but if I were your GP, you'd be in hospital.

Are you drinking at least some lucosade or powerade to help with the potassium and electrolites? Magnesium is also depleted when you are dehydrated. Are you taking any supplements for that?

How about salt? Anything at all? Have they given you Ensure or anything to help with your calorie intake?

ime drinking lucozade an i just want sweet things to eat no supplements my meds are predisone 30mg fluoxacillllin 500mg 4 times a day thats because ive got pyroderma gangrenosum due to the crohns wow that painful thyroxine morthine oral for when pain at worst an lopermide.ime seriously thinking changing my drs.

 

[Terriernut]

How long have you been having this Penny? Are you seeing a GI?

 

[penny]

How long have you been having this Penny? Are you seeing a GI?

neally a week but have told dr saw gi couple week ago who has basically left me untill i start humira an see how i go .so dont know if he will send another appoint threw just yet .ime goin to have to ring the ibd nurse in morn also as she aint been bothered to ring me .

 

[Terriernut]

neally a week but have told dr saw gi couple week ago who has basically left me untill i start humira an see how i go .so dont know if he will send another appoint threw just yet .ime goin to have to ring the ibd nurse in morn also as she aint been bothered to ring me .

The IBD nurses are usually very good! I just hope you get some luck tomorrow!

 

[penny]

The IBD nurses are usually very good! I just hope you get some luck tomorrow!

thank you i ve only seen her once were she said she will arrange injections