- Joined
- Feb 23, 2012
- Messages
- 180
Ugh I am so glad that we are going to be seeing a New Gi. Hope I am able to contain myself tomorrow when we see the old GI. Everything that I have read in Kotas records are not right or what he told us.
First we were told that it was a very mild case of crohns. I read in records its severe case.
We were told that it was in 2 spots No it shows to have been in 4.
Then he writes that Kota is up til 4 playing video games and watching tv. No thats not what was said. I said he was up til 4 some morning becasue he cant sleep because he is in pain. Nothing was said about video games and tv. And of course he left out the part about him telling me that when he was 12 his mom would have knocked him out if he was still up at 4.
He didnt even want to see us when he started Ko on the 6mp. I was the one that said I would not start him on it until we spoke face to face. This still being the only time he has seen Ko since he was Dx in Feb. He was of no help that day answering any questions. Because you know me I had questions. Well in the records this is what he said...Spent 45 min (we havent seen him 45 minutes total since he has been Ko dr.) discussing with family the various possible adverse reactions Dakota may experience while on 6mp, including pancytopenia, liver inflammation, lymphoma. I have informed family that when treating IBD there is a continuous questioning of risk to benifit ratio. I have informed parents of the vaious other therapies we will consider in the future, including MTX and biologics..
I copied straight from the records and it is complete horse ****.. He didnt say any of this to us. He didn't tell us any side effects I had to read them.. Then when I asked about them he said he had never heard that before. Acted like I was a dumb ass. I have never heard of pancytopenia and I would have wrote it down becasue I had my tablet and pen with me.. He said that there are risk with everything he does in everyday life. Thats what he said about risk.. I asked what the various therapies were.. He said we are not going to talk or think about that right now. We are going to try the 6mp. As for MTX and biologics I dont have a clue what the hell that is either. Ugh I am so mad right now. Why the need to lie about everything.. I told him I was scared this was all new and this was my baby that he was treating and his words to me where WELL ITS SOMEONES BABY I TREAT EVERYDAY!!
No where in his records it shows that I ever even call with questions or concerns. Why is none of that in his chart?
Sorry for the vent..
First we were told that it was a very mild case of crohns. I read in records its severe case.
We were told that it was in 2 spots No it shows to have been in 4.
Then he writes that Kota is up til 4 playing video games and watching tv. No thats not what was said. I said he was up til 4 some morning becasue he cant sleep because he is in pain. Nothing was said about video games and tv. And of course he left out the part about him telling me that when he was 12 his mom would have knocked him out if he was still up at 4.
He didnt even want to see us when he started Ko on the 6mp. I was the one that said I would not start him on it until we spoke face to face. This still being the only time he has seen Ko since he was Dx in Feb. He was of no help that day answering any questions. Because you know me I had questions. Well in the records this is what he said...Spent 45 min (we havent seen him 45 minutes total since he has been Ko dr.) discussing with family the various possible adverse reactions Dakota may experience while on 6mp, including pancytopenia, liver inflammation, lymphoma. I have informed family that when treating IBD there is a continuous questioning of risk to benifit ratio. I have informed parents of the vaious other therapies we will consider in the future, including MTX and biologics..
I copied straight from the records and it is complete horse ****.. He didnt say any of this to us. He didn't tell us any side effects I had to read them.. Then when I asked about them he said he had never heard that before. Acted like I was a dumb ass. I have never heard of pancytopenia and I would have wrote it down becasue I had my tablet and pen with me.. He said that there are risk with everything he does in everyday life. Thats what he said about risk.. I asked what the various therapies were.. He said we are not going to talk or think about that right now. We are going to try the 6mp. As for MTX and biologics I dont have a clue what the hell that is either. Ugh I am so mad right now. Why the need to lie about everything.. I told him I was scared this was all new and this was my baby that he was treating and his words to me where WELL ITS SOMEONES BABY I TREAT EVERYDAY!!
No where in his records it shows that I ever even call with questions or concerns. Why is none of that in his chart?
Sorry for the vent..
